Imminent Brain Donation
For imminent brain donation matters, email Madeline Uretsky, call her at 617.358.6027, or call the 24-hour emergency donation pager at 617.992.0615.
For imminent brain donation matters in Australia, email SPORTS Brain Bank or call the 24-hour line (02) 8005 6891.
Thank you for pledging your brain to the Concussion Legacy Foundation! Similar to organ donation, the pledge of one's brain is a precious gesture that helps others in a truly impactful way. Through your pledge, you are joining a community of nearly 5,000 former athletes and military veterans who have pledged to the Concussion Legacy Foundation. The group includes soccer legend Brandi Chastain, NASCAR superstar Dale Earnhardt Jr., Pro Football Hall of Famer Nick Buoniconti, former US Secretary of Veterans Affairs Robert A. McDonald, US Congressman David Cicilline, and hundres of military Veterans. So on behalf of the Concussion Legacy Foundation, welcome. You're in good company.
Your Brain Donor Materials
After you pledge your brain, you will receive your personalized brain donor card and an informational packet in the mail. Simply keep the card in your wallet as you would a traditional organ donor card. Share it with friends and family to let them know about the brain pledge program! Consult the informational brochure for more information on the brain donation process. If you misplace your card or brochure, or have other questions about donor materials, please email Kelly Dean.
Our My Legacy campaign recognizes those who have made a lasting contribution to concussion and CTE research, and encourages others to do the same. By pledging your brain, you have taken one of the most meaningful steps possible in supporting crucial research and leaving your legacy. We encourage you to share your story and why you pledged on social media using #MyLegacyPledge. Click here to learn more about My Legacy and read the stories of others who have pledged their brains or contributed in other ways.
We are proud to support the following studies currently underway across the country.
LEGEND (Longitudinal Examination to Gather Evidence of Neurodegenerative Disease)
DIAGNOSE CTE Research Project (Diagnostics, Imaging, And Genetics Network for the Objective Study and Evaluation of Chronic Traumatic Encephalopathy)
Location: Boston, New York, Las Vegas, Scottsdale/Phoenix
Seeking: Former NFL players, former college football players, and non-contact athlete control participants between the ages of 45 and 74 will be recruited for a three day study visit at one of four locations.
Goal: The DIAGNOSE CTE Research Project is a multi-center, multi-disciplinary, 7-year, longitudinal study designed to develop and refine methods of diagnosing Chronic Traumatic Encephalopathy (CTE) during life and to examine risk factors for CTE. The study will not be providing a diagnosis or treatments to participants. Funded by the National Institute of Neurological Disorders and Stroke.
Learn how to participate here or contact Taylor Platt at firstname.lastname@example.org or 617-414-1193.
Click here to visit the DIAGNOSE CTE Research Project website.
HOPE CTE Study (Health Outreach Program for the Elderly)
Location: Greater Boston
Seeking: Male and female subjects who are at least 50 years old, played a minimum of five years of football, MMA, boxing, rugby, soccer, or ice hockey, with two of those years occurring at the collegiate, semi-professional, or professional levels. Participants will have a two-day visit once a year to the BU School of Medicine to participate in a variety of tests, including a neurologic exam, memory and cognitive tests, mood and behavior questionnaires, a blood draw, and an MRI scan.
Goal: The HOPE Chronic Traumatic Encephalopathy (CTE) study is designed to develop methods of diagnosing CTE during life. This is an extension of the Health Outreach Program for the Elderly (HOPE) Study of the Boston University Alzheimer’s Disease Center.
Interested in participating? Contact Alyssa Phelps at email@example.com or 617-358-6545.