Participate in Research

Imminent Brain Donation

For imminent brain donation matters, email Madeline Uretsky, call her at 617.358.6027, or call the 24-hour emergency donation pager at 617.992.0615.

For imminent brain donation matters in Australia, email SPORTS Brain Bank or call the 24-hour line (02) 8005 6891.

Sign Up for the Brain Donation Registry

Donating one’s brain to research is one of the most precious gifts an individual can make. Brain donation helps researchers understand the consequences of repetitive brain trauma by allowing close examination of any injuries or disease processes.

Dale Earnhardt Jr. brain pledge
NASCAR superstar Dale Earnhardt Jr. pledged his brain to the Concussion Legacy Foundation in 2016.

All adults, with our without a history of sports participation or military service, are eligible to register as brain donors. Those who make the #MyLegacyPledge receive a brain donor wallet card, as well as information on the brain donation process. Donated tissue is examined by a team of doctors who arrive at a consensus diagnosis which is communicated to next of kin. All expenses associated with donation and analysis are handled by the brain bank - there is no cost to donors or family members.

Location: International
Seeking: Athletes and military veterans throughout the United States may pledge to donate their brains and spinal cords upon their death to look for evidence of damage and disease
Goal: Understand CTE, share tissue with researchers around the world to advance knowledge
Contact: Click the green button below to join the brain donation registry with the option to receive a wallet card.

Pledge to Donate Your Brain ›

We are proud to support the following studies currently underway across the country.

LEGEND (Longitudinal Examination to Gather Evidence of Neurodegenerative Disease)

Location: National
Seeking: Current and former athletes of all levels throughout the US and Canada for yearly telephone interview
Goal: Learn about risk factors for concussions and CTE
Learn more here.

DIAGNOSE CTE Research Project (Diagnostics, Imaging, And Genetics Network for the Objective Study and Evaluation of Chronic Traumatic Encephalopathy)

Location: Boston, New York, Las Vegas, Scottsdale/Phoenix
Seeking: Former NFL players, former college football players, and non-contact athlete control participants between the ages of 45 and 74 will be recruited for a three day study visit at one of four locations.
GoalThe DIAGNOSE CTE Research Project is a multi-center, multi-disciplinary, 7-year, longitudinal study designed to develop and refine methods of diagnosing Chronic Traumatic Encephalopathy (CTE) during life and to examine risk factors for CTE. The study will not be providing a diagnosis or treatments to participants. Funded by the National Institute of Neurological Disorders and Stroke.
Learn how to participate here or contact Taylor Platt at diagnose@bu.edu or 617-414-1193.
Click here to visit the DIAGNOSE CTE Research Project website.

HOPE CTE Study (Health Outreach Program for the Elderly)

Location: Greater Boston
Seeking: Male and female subjects who are at least 50 years old, played a minimum of five years of football, MMA, boxing, rugby, soccer, or ice hockey, with two of those years occurring at the collegiate, semi-professional, or professional levels. Participants will have a two-day visit once a year to the BU School of Medicine to participate in a variety of tests, including a neurologic exam, memory and cognitive tests, mood and behavior questionnaires, a blood draw, and an MRI scan.
Goal: The HOPE Chronic Traumatic Encephalopathy (CTE) study is designed to develop methods of diagnosing CTE during life. This is an extension of the Health Outreach Program for the Elderly (HOPE) Study of the Boston University Alzheimer’s Disease Center.

Interested in participating? Contact Alyssa Phelps at phelps@bu.edu or 617-358-6545.

Leading to a Safer Future

Contact Us

Concussion Legacy Foundation
361 Newbury Street, 5th Floor
Boston, MA 02115

(T) 857.244.0810
info@concussionfoundation.org

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