Not everyone is aware of Post-Concussion Syndrome – even some doctors don’t know that concussions can linger for so long. But rest assured, it is a real thing that happens to real people.

Approximately 20 percent of people who suffer a concussion will develop PCS. Your recovery will become even more difficult if you have to waste your energy trying to justify your illness to those who don’t believe you. Believe in yourself and know science is on your side.

PCS might not get better tomorrow, but it does get better. Timelines for PCS recovery are usually counted in weeks and months, not days. Along that timeline, you’ll have good days and bad days, and often you’ll make a big improvement, then plateau, and maybe even take steps backward.

The ups and downs are normal, and eventually, the bad days will become the exception, not the rule. Try to take things one day at a time (even though it’s hard!), and remember you can have a bad day or even a bad week and still be on the right track to recovery.

Global pandemics, economic downturns, life-altering events, traumatic experiences, natural disasters, financial difficulties, legal issues – these are all events in life that can happen at any time and increase the level of stress you and your loved ones may be under. 

Coping with Post-Concussion Syndrome during these times presents additional challenges that others may not understand or appreciate. Perhaps the medical services in your area are becoming overwhelmed, and you’re not sure if you can get your normal treatment. 

Perhaps your experience makes you feel isolated or alone. You may be feeling heightened anxiety, depression, or stress. We want you to know we’re here for you with valuable PCS resources and support to aid your recovery.

During PCS recovery, it’s critical to have a support system by your side. If you can be honest about your persistent post-concussion symptoms and what you’re going through with close friends and family, they’ll be better prepared to support you.

Noah Abrams suffered from PCS while playing soccer at Northeastern University. Opening up to his teammates, friends, and family made all the difference for him. He says, “There is no shame in admitting that sometimes things get so hard you can’t handle it on your own.”

For an injured brain, stress can become harder to manage and may even trigger symptoms. Mindfulness and meditation can be great ways to promote brain health and well-being. After yoga, brain injury patients have reported feeling calmer and having improved sleep, emotional well-being, and physical well-being.

James Schorn suffered at least five concussions during his high school lacrosse career. He developed PCS and uses meditation to stay positive and focused throughout his recovery.

If you’re ready to give meditation a try, check out CLF Legacy Family Community member Dr. Shannon Albarelli’s free session for PCS patients.

When you’re coping with Post-Concussion Syndrome, it’s easy to focus on all the things you can’t do. Your interests and activities might become too difficult and symptom-provoking.

This can be challenging, but there is hope. A great way to cope is to shift your attention to what you can do and work to explore new, low-stimulation interests you wouldn’t have otherwise tried.

Esther Lovett started a blog about her PCS recovery and detailed how she turned to new activities after her concussion ended her soccer career, which led to new friends and new opportunities.

Environmental stimulation from sights and sounds often increases PCS symptoms. Using tools like earplugs, hats, sunglasses, or screen filters to reduce that stimulation can help you make it through the day without your symptoms spiking too high.

Don’t be afraid of looking funny or standing out if you need special accommodations to reduce stimulation. Do what you need to do to feel better. If you do get over-stimulated, it’s always good to have an escape plan. If you can map it out ahead of time, try to find a quiet space nearby where you can take breaks or a way that you can easily leave if you need to.

Ally Crich, a PCS sufferer, learned how to build her concussion kit, and it never leaves her side.

Resting after a concussion and throughout your PCS recovery is key. It gives your brain a chance to heal and can help alleviate symptoms in the moment. It can be hard to know when to push it and when to pull back.

Maintaining a positive and hopeful mindset can make all the difference throughout your recovery. It can be hard to cling to hope when the pain of your symptoms is overwhelming, but we want you to remember that help is available and you are not alone.