Legacy Stories

Edward Allen Roth

Our father, Ed Roth, lived his life with courage, strength, honesty, and love. Those qualities forged his path as a member of the US Air Force, a talented college and professional football player, a Captain of the Fort Wayne Fire Dept., and – always – a devoted family man. Later in our father’s life, he suffered from depression, anger, and cognitive difficulties. Although he was diagnosed with Alzheimer’s-related dementia, as a family we began to wonder about Chronic Traumatic Encephalopathy (CTE), the brain disease linked with repetitive head trauma from football that we were hearing more and more about. After our father’s death on August 3, 2013, our family donated his brain for research, and scientists at the VA-BU-CLF Brain Bank confirmed the suspicion. Our father had lived with relatively severe CTE for much of his adult life. We hope his story can help educate others.

Ed Roth Concussion Legacy Foundation

Edward Allen Roth was born on June 2, 1929 in Fort Wayne, Indiana. The son of Joseph and Nellie (Leiter) Roth, he was the last of four children. His parents divorced shortly after his birth and his siblings were significantly older. Growing up in the Depression Era, Ed often referred to himself as a product of the “School of Hard Knocks,” living on his own from age 14. Strappingly handsome and equally strong, Ed took an early liking to football, taking his frustrations out and proving himself on the athletic field. He also had an intense passion for music, playing various horn instruments in his high school band. 

Ed Roth 2 22

Despite his first love of music, athletics were his ticket to success. Ed earned a statewide reputation in both track & field and football as a student at South Side High School (not to mention joining the band on field at halftime). He was recruited by Bear Bryant to play for the University of Kentucky. However, his loyalty to his home state led him to play for Clyde Smith at Indiana University, where he earned his B.S. in Physical Education and was a member of the Delta Upsilon fraternity and R.O.T.C.

Ed Roth 1 22

Ed lettered in football, track & field, and wrestling while at Indiana, playing offense and defense on the football team. Due to injury that kept him from playing most of his sophomore year, Ed was granted permission to play at Indiana for five seasons, allowing him to work on a Master’s degree. The highlight of his junior year was Indiana’s last defeat of Notre Dame, in which he played a pivotal role earning him accolades in the press.   

Edward_Roth_Teammates 22

Ed’s last two “senior” seasons were his most successful. In both seasons, despite Indiana not being a powerhouse football team, he was named for the All-State College First Team Offense & Defense by the Indianapolis Star and earned Honorable Mentions for both the UPI All-American and AP All Big 10. In 1952, he was named the Big 10 MVP Lineman of the Year, as well as 1st team All American “60 Minute Team” by the Chicago Tribune. At the end of the 1952 season, Ed played in both the Shriners’ College All Stars North-South game in Miami, FL as well as the Senior Bowl in Mobile, AL. Due to scheduling conflicts, he declined invitations to play in the Blue-Gray Game and the Shriners All Stars East-West Game at the end of his final college season. His proudest achievement of the 1952 nine-game season was 427 minutes played, which may still be a Big 10 and NCAA record. Unfortunately, I.U. never recognized him in its Athletic Hall of Fame, as official records were not kept of his team’s losing seasons.

In the spring of 1953, Ed left I.U. prior to earning his Master's degree when called to serve his country during the Korean conflict in the U.S. Air Force. During his military service, he was chosen by J. Edgar Hoover to work as an international courier. He was later honorably discharged from reserve forces as a First Lieutenant.

After his active service ended in 1955, Ed played in the Canadian Rugby Union (later the CFL) for the Winnipeg Blue Bombers. He had an offer to play for the Chicago Bears, but he turned it down as the Blue Bombers paid more money. However, Ed quickly realized that his prospects for injury with no long-term medical benefits were not worth the abuse his body suffered playing pro ball.  After one season, he returned to Indiana to work on the Pennsylvania and Nickel Plate Railroad lines. He later served proudly as a fireman with the Fort Wayne Fire Dept. for 15 years, achieving the rank of Captain. 

Edward_Roth_wedding 22

He met the love of his life, Rosalind Cozmas, and married her on February 5, 1961. His love of family led him to embrace Rosie’s family’s Macedonian way of life, and he was ever grateful for being accepted into the Macedonian community of Fort Wayne. Ed and Rosie had two children, Nick and Mary. While he encouraged his children to love athletics, Ed never pressured his son to play football. Despite his love for the game, he did not want his son to endure the lifelong consequences from the types of injuries he had suffered on the football field.

Edward_Roth_family_portrait 22

Ed was passionate about investing in the stock market, always willing to teach friends and family how to chart stocks and ride the waves with the bulls and the bears. He was almost never seen without his Wall Street Journal, even in the steam room at the downtown YMCA. He also loved his kennel full of hunting beagles, perhaps his greatest joy after his family during his adult years. A bit unique, Ed’s quirkiness, occasional explosive outbursts and unusual use of expletives could be shocking to strangers, but they were amusing and endearing to those who knew and loved him. He was an honest man who gave truthful advice, putting family and unconditional love first. Friends lovingly referred to him as “Big Eddie”, but to his family he was “Big Daddy”, “Poopsie”, “Dedo”, or “Papa Grande”.

Edward_Roth_grandkids 22

Later in Ed’s life, he was diagnosed with Alzheimer’s-related dementia. However, as news reporting and coverage of CTE slowly grew, Mary  and Nick began discussing the possibility that their father might be suffering from CTE instead. After all, throughout their lives, he had exhibited the typical symptoms of depression, explosive outbursts and organizational dysfunction that accompany the disease. However, as Ed advanced in age and lost more of his memory, his temper mellowed and his loving nature became much more evident.  

Upon his death on August 3, 2013, the family was fortunate to coordinate a brain donation to the VA-BU-CLF Brain Bank. The team at the Brain Bank was able to definitively tell them that Ed Roth had lived with relatively severe CTE for much of his adult life. It was a comfort and relief for Nick and Mary to understand their father with this new perspective.

Ed always preached the life lessons he learned playing football. He loved the game and the bonds it helped him forge with players he encountered on both sides of the line, but he also understood the physical toll it took on his life. A product of his persevering generation, Ed lived his life with courage, strength, and occasional frustration, sharing his love for his family and friends, as well as capitalism and country, with all willing listeners.

Edward_Roth_memorial 22

We are grateful to the wonderful team of Boston University doctors who interviewed and debriefed us, giving us answers to questions that otherwise would have never been answered. Nick and Mary’s only regret is their mother predeceased their father, and she did not receive the same knowledge and closure. Edward Allen Roth was a wonderful husband, father, grandfather, uncle, friend and patriot. Bog da Prosti (Memory Eternal), “Handsome Eddie”.

Edward_Roth_glasses_on_chest 22

You May Also Like

Brain Bank Team

Although we cannot yet accurately diagnose CTE in living people, a specialist can help treat the symptoms presenting the most challenges.

CTE Treatments
Mike and Kim Adamle CTE Resources

Those struggling with suspected CTE are not the only ones who need support. View tools and resources for CTE caregivers.

Caregiving for CTE

Follow Us


Sign Up For Our Newsletter