Greg Lens

CTE and what it means to me

Chronic Traumatic Encephalopathy is a progressive degenerative disease of the brain found in people with a history of repetitive brain trauma.

I chose to do my project on CTE because my grandfather, who played in the National Football League as well as the World Football League, suffered from and died with this horrible disease. With all of the recent attention and awareness around sports related concussions, I really wanted to learn more and see what I could do to educate myself, others and raise my own awareness.

It was important for me to really understand how my grandfather was affected by CTE. When I was five years old, I remember telling him that when I grew up I wanted to be a football player just like he was. He kind of laughed but then told me that I should stick with games like golf and tennis. He said those are two sports that you can play your whole life and your body won’t take a beating like it does in football. Then he told me that football just wasn’t worth it. I still really like watching football and I still wanted to play too. But I just have to think, is it really worth it? I am still at risk though, because I play soccer. CTE does not only affect football players, all athletes take chances when playing sports.

In order to protect myself, I choose to learn more. How can I prevent this from happening to me? In order to help others, I choose to talk about what I learn. How can I help to keep my teammates and friends safer?

I think what’s really interesting about my project on CTE and sports related concussion research is that it’s new information that can change the way that we play dangerous games. Rules are changing and concussions are getting way more attention than back when my grandfather played. Back then they were just told to go right back in and play. Now players are looked over on the sidelines before deciding if they can go back in. This topic has personally affected my family which also makes it interesting to me.

Most of the research that I put into my project had to do with signs of CTE and how it can be caused. I also mentioned the team at the Concussion Legacy Foundation and Boston University. They are who I learned from the most. Chris Nowinski, the founder of CLF has written a book and now a movies has been made from it. It’s called Head Games.

The research that’s been done is great. On their site I found 7 steps for brain safety. I thought this was very easy to follow and very important in making a difference.

CTE 7 steps for Brain Safety:

CTE is preventable with a few steps

1.Preseason education for athletes

2. Preseason education for coaches

3. Preseason education for parents

4. CDC Concussion Action Plan:

  • Remove athlete from play.
  • Ensure athlete is evaluated by an appropriate healthcare professional. DON’T JUDGE IT YOURSELF.
  • Inform athletes’ parent or guardian.
  • Allow athlete to return to play with a health care professionals’ approval.

5. Utilize CDC Heads up Program and clipboard sticker.

6. Prevention through neck strengthening.

7. Prevention through overall Brain Trauma.

I really hope that I have helped you to understand the brain disease known as CTE, a little more. With these 7 steps as a start and a guide, I feel like we can be on our way to safer competitive sports.

Johnny Lira

Our father, Johnny Lira, was more than a boxer.

He was an activist who rallied on behalf of boxers, having founded S.P.A.R.T.A (Sports Professionals and Amateurs Resolving To Achieve), trying to get people to come around and see how badly they needed a pension and union, and how ridiculous it was that they didn’t already have one. He was a silly father with firm convictions, a son who adored his mother, a brother who loved his sisters, the uncle every child loved to see come around at family functions and goof off, a mentor to people whom he so deeply wanted to help, whether training a boxer or martial artist, or providing tools to help navigate through the boxing world, an actor (“Gladiator” with Cuba Gooding Jr. and the History Channel’s “Who Shot Martin Luther King, Jr.”), a friend (always ready with a crazy story or joke) dabbler of local politics, teller of riddles, boxing promoter. But perhaps his most favorite role later in life was that of loving father and grandfather. You’ve never seen someone light up so brightly as he did when he was able to be around his three daughters, son and his grandchildren. His grandchildren all adored him SO much.

Johnny, the “World Class Pug,” was a fighter in more ways than one. If he wasn’t fighting for himself he was fighting for someone else and we were raised seeing that. He was passionate about hard work and he swore that anything was achievable. That everyone has the potential to succeed. You were never able to say, “I can’t” to him. Priceless lessons.

He was born in Chicago, Illinois, to Duiko Lira and Delores DeRose Lira in 1951 and was a red-headed and freckle-faced trouble maker and the youngest of three children. That mischievous streak continued into adulthood and, honestly, led him to his boxing career.

His amateur career started in Chicago boxing at the Chicago Youth Organization (C.Y.O. gym) training under Harry Wilson and corner man Chuck Bodak. He went on to compete and win in the Chicago Golden Gloves in 1974 and 1975 as a welterweight and middleweight and after turning professional, he relocated to Las Vegas, Nevada, to train under the legendary Johnny Tocco.

Johnny Lira went on to become the United States Lightweight Boxing Champion (Hawaii 1978) with an impressive record of 29 wins, 6 losses, 1 draw and 16 knockouts.

Our father had a very close relationship the Union League Boys Club (club #2) throughout his whole life, a youth club member, staff member, volunteer, mentor, and in the late 1970s he was the head boxing coach. Later he went on to work for the Chicago Park District as the boxing supervisor for the citywide boxing program. He loved kids and believed so firmly that children, especially ones with few options or many disadvantages, should be given an outlet, something that teaches them hard work and discipline while boosting self esteem and pride. That was why he believed boxing was a great tool for kids.

He was a judge, referee, corner man and trainer for both boxing and martial arts. Promoter of 2 televised boxing events that were on national television. He loved to travel, learn new things, meet new people, and charm them with his crooked nose and sneaky smile. With his charm and smile he would impress people with his wide and unique range of self-taught knowledge.

On December 8, John “Johnny” Lira, “World Class Pug,” “Italian Rose,” “Character Extraordinaire” (as noted on his business cards!) left us, and left behind a great legacy in the Chicago and has made a print in the world of boxing.

Even though that sneaky smile and chuckle of his is no more, the things he left us with are more than we could have dreamed. He wasn’t perfect, no one is, but he was so loving, so encouraging and the biggest fan to each of his children, grandchildren, nieces, nephews, godchildren, kids/teens he mentored and he really believed in them. Never a phony. Kids can smell phony a mile away, and when someone who shines as brightly as our father did, he would tell you that you’re great, smart, strong and beautiful – the effect that has is something that can’t be matched! He has taught us so much, always preparing us for anything in life, teaching us chess, boxing, swimming, business, self-respect and having a touch of class.

He will be missed so much.

We are all so proud of him and his accomplishments, and his last gift of his brain donation. It added some closure to some of the tough stuff that we had to go through. We are so glad to be able to maybe help, even a little, further the research to help bring awareness to CTE.

Thank you, Boston University.

Miss you Dad

Listen to Johnny’s daughter, Gina, discuss his story on Jill Hopkins’s “Mixtape” radio show here. Watch his daughter Nina share his story on ABC7 Chicago.