Participate in Research

Imminent Brain Donation

For imminent brain donation matters, email Patrick Kiernan, call him at 617.414.1187, or call the 24-hour emergency donation pager at 617.992.0615.

Sign Up for the Brain Donation Registry

Donating one’s brain to research is one of the most precious gifts an individual can make. Brain donation helps researchers understand the consequences of repetitive brain trauma by allowing close examination of any injuries or disease processes.

Chris Nowinski Mike Haynes
Concussion Legacy Foundation Founding President Chris Nowinski with Pro Football Hall of Famer Mike Haynes, who is showing off his brain donor wallet card, prior to the 2016 Super Bowl in Santa Clara.

All adults, with or without a history of sports participation or military service, are eligible to register as brain donors. Those who make the pledge receive a brain donor wallet card, as well as information on the brain donation process. Donated tissue is examined by a team of doctors who arrive at a consensus diagnosis which is communicated to next of kin. All expenses associated with donation and analysis are handled by the brain bank – there is no cost to donors or family members.

Location: International
Seeking: Athletes and military veterans throughout the United States may pledge to donate their brains and spinal cords upon their death to look for evidence of damage and disease
Goal: Understand CTE, share tissue with researchers around the world to advance knowledge
Contact: Sign up here to join the brain donation registry with the option to receive a wallet card

We are proud to support the following studies currently underway across the country.

LEGEND (Longitudinal Examination to Gather Evidence of Neurodegenerative Disease)

Location: National
Seeking: Current and former athletes of all levels throughout the US and Canada for yearly telephone interview
Goal: Learn about risk factors for concussions and CTE
Learn more here.

Neuroplasticity-Based Technology for Executive Function Deficits in Concussion 

Location: Emerson Hospital, Westford, MA
Seeking: People age 18-35, both healthy and those with Post Concussion Syndrome
Goal: Measuring the effect of specialized video gaming on concussion patients
Learn more here.

VICTORS (Visual Structure and Function in Contact Sport Athletes) 

Location: Chicago, New York City
Seeking: Former professional contact athletes and non-professional, non-contact athletes
Goal: Can we diagnose concussion damage through a simple eye exam?
Learn more about VICTORS in Chicago here and VICTORS in New York here.

DIAGNOSE CTE Research Project (Diagnostics, Imaging, And Genetics Network for the Objective Study and Evaluation of Chronic Traumatic Encephalopathy)

Location: Boston, New York, Las Vegas, Scottsdale/Phoenix
Seeking: Former NFL players, former college football players, and non-contact athlete control participants between the ages of 45 and 74 will be recruited for a three day study visit at one of four locations.
GoalThe DIAGNOSE CTE Research Project is a multi-center, multi-disciplinary, 7-year, longitudinal study designed to develop and refine methods of diagnosing Chronic Traumatic Encephalopathy (CTE) during life and to examine risk factors for CTE. The study will not be providing a diagnosis or treatments to participants. Funded by the National Institute of Neurological Disorders and Stroke.
Learn how to participate here or contact Taylor Platt at diagnose@bu.edu or 617-414-1193.
Click here to visit the DIAGNOSE CTE Research Project website.

Leading to a Safer Future

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Concussion Legacy Foundation
867 Boylston Street, 5th Floor
Boston, MA 02116

(T) 781.790.1921 | (F) 781.790.8922
info@concussionfoundation.org

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