Mark Loys von Kreuter

 

Mark graduated from Darien High School in 1980 where he and his team were undefeated and won the FCIAC Connecticut State Football Championship. Mark then attended Choate Rosemary Hall as a post-graduate where he and his team also went undefeated winning the New England Prep School Football Championship. Mark was heavily recruited by numerous Ivy League colleges and attended Princeton University, graduating in 1985 where he majored in history, was a member of the University Cottage Club and was an outstanding defensive end for the Princeton Tigers earning three varsity letters during the ’82-’84 Tiger campaigns. Number 98 ruined many a fall Saturday afternoon for the visiting team at Palmer Stadium and was named Defensive Player of the Game against Bucknell. A true “son of Princeton,” Mark was happiest when going back to Old Nassau with friends and classmates, especially at football games and reunions.

Mark had a very successful career as an institutional equity salesman starting his career in New York at Smith Barney. During that time received his MBA from the Stern School of Business at New York University, attending classes at night and on weekends. Recently Mark was a partner at Capture Capital LLC where he worked raising institutional capital for a variety of hedge funds and private equity funds. He was hard working and made many friends along his career path. He was a member of the Racquet & Tennis Club on Park Avenue in New York City, the Noroton Yacht Club and Wee Burn Country Club in Darien.

Large in stature, but even larger in persona and generosity, Mark traveled the world to celebrate his many friends; a wedding in Rome, a U-2 concert in Dublin, several visits to Singapore to be with his godson who was fighting a rare disease resulting from treatment which cured his cancer, ski trips to Austria, golf in the British Isles, Italy and France, or a safari in Kenya. The underlying thing that made Mark so special is that these things were all done with and for his friends and family. He loved being there for people, especially his mother, his siblings and his ten nieces and nephews who adored him.

 

 

The last thing Mark did before he died was to write a letter to his mother, telling her how much he loved her and to have his brain donated for CTE research. We are honored to have Mark’s memory live on with the Concussion Legacy Foundation. While he shared his thoughts and concerns for CTE with his teammates, he kept these concerns to himself when it came to family and other friends, choosing to not be a burden. The six months of the pandemic leading up to his death took a toll on Mark. He left New York City for Connecticut to make sure that both he and his widowed mother were safe from COVID19. Family was always Mark’s top priority, and he would be very happy today in the knowledge that he succeeded in this regard as his mother is fully vaccinated. Mark was aptly called a “perfectionist in an imperfect world” but not one of his family members or his friends had any indication that Mark was suffering so much to take his life.

The outpouring of sympathy and love for Mark was and continues to be the measure of the man he was and will always be, bigger than life. Anyone who knew him is better for having known Mark and he will live in our memories forever.

 


Suicide is preventable and help is available. If you are concerned that someone in your life may be suicidal, the five #BeThe1To steps are simple actions anyone can take to help someone in crisis. If you are struggling to cope and would like some emotional support, call the Suicide & Crisis Lifeline at 988 to connect with a trained counselor. It’s free, confidential, and available to everyone in the United States. You do not have to be suicidal to call. 

If you or someone you know is struggling with concussion symptoms, reach out to us through the CLF HelpLine. We support patients and families by providing personalized help to those struggling with the outcomes of brain injury. Submit your request today and a dedicated member of the Concussion Legacy Foundation team will be happy to assist you.

 

Eric Wainwright Jr.

Warning: This story contains mentions of suicide and may be triggering for some readers.

April Harrison and Eric Wainwright Sr. remember their son, Eric Wainwright Jr., or “E” for short, always looking into the future.

E was a son of football. Wainwright Sr. played college football and had a brief stint in the NFL before coaching college football. E was the ball boy for his dad’s Delaware State University football team when he was four years old.

He was too young to play for real, but young Eric couldn’t wait for his first games. When he was six, his parents noticed a horrific odor coming from his room. He poured water all over his carpet to simulate what it would be like to play in a rain game.

Eventually, little E got his wish and started playing tackle football when he was seven years old. His speed, strength, and coordination quickly earned him the de facto role perennially bestowed on the most gifted athlete on youth football teams: the star two-way running back and linebacker.

Eric developed his personality as an old soul. He’d make profound remarks about what he saw on television that would cause his parents to look at each other in amazement.

He moved from Delaware to Piscataway, New Jersey in middle school and spent his first years in high school there. But once again, E had his eyes on the next thing. He convinced his parents to send him to Cheshire Academy in Connecticut for a year and then to Valley Forge Military Academy in Wayne, Pennsylvania. Eric wanted to go to Valley Forge because he thought he might be interested in military leadership one day.

E thrived at Valley Forge. At a school full of future leaders and on a roster of well-rounded athletes, Eric was named captain of the football team.

Football was not the only sport Eric found a team to uplift in his time at Valley Forge. He picked up lacrosse on a whim and excelled, participated in the school’s science teams, and was active in student government. His father described Eric’s way of being as being impressively nerdy.

“He had all the gifts,” said Eric Sr. “He was talented, gifted athletically, an extremely good orator, handsome, and charismatic.”

“He would bring people together,” April added. “He made folks happy.”

After Valley Forge, Eric attended and played football for Dean College in Franklin, Massachusetts for two years before a year at East Stroudsburg University in Pennsylvania. He then transferred to Wesley College in his home state of Delaware.

Eric quit football by the time he got to Wesley to focus on academics and internships. But even though he was done playing, the effects of nearly two decades of the contact sport stayed with Eric.

Eric’s father estimates Eric suffered five concussions in his football career, and countless more nonconcussive blows from playing the two positions most frequently involved in big hits.

“He always let us know when he had concussions,” said Eric Sr. “But it’s those nonconcussive hits that we weren’t really aware of. Those are the troublemakers.”

Eric made the most of his time in Delaware, interning for Senator Tom Carper. Over two years, Eric traveled up and down the east cost with Senator Carper, learning about government and the legal system. Eric also worked on the Clinton campaign in 2016, meeting future President Joe Biden in the process.

A product of public education himself, Eric knew firsthand how the system failed so many students, especially students of color, nationwide. His experience in first public then private education, coupled with his time around politics, inspired him to publish his own eBook in March 2016, titled The Miseducation of Poor Americans: A Legacy of Neglect and Deception.

By the time Eric graduated from Wesley in spring 2017, it had been years since his parents had seen him for an extended period; he hadn’t lived with either parent since his sophomore year of high school. When April and Eric Sr. visited him for graduation, they noticed Eric’s trademark ambition was starting to eat away at him.

Eric’s resume and acumen had him dreaming of scoring a perfect, high-paying job directly out of college. But when that offer didn’t come, Eric got anxious.

“He had done so much and done so well in college, he knew after graduation that he was going to go out there and get the job,” said April. “But it takes a while.”

He took a job as a management trainee for Hertz and was living with Eric Sr. back in Piscataway.

“I’m wearing a suit and I’m cleaning cars,” Eric Sr. remembers his son saying to him over the phone. “I’m not supposed to be here.”

Eric Sr. tried to console his son and preach patience, but Eric Jr. struggled to reconcile his current position with the hopes he had for himself. On top of his anxiety, Eric Sr. saw his son seek out dark places to manage his sensitivity to light and avoid headaches. Sr. always knew his son to command the attention of every room he entered. But when he lived with Eric he could see his son was concealing an inner pain.

“When I was able to watch him and be with him, that’s when I was like, ‘Wow, something’s wrong,’” said Eric Sr.

Eric Sr. has his own struggles with various effects of playing football. Through scans and evaluations at Mt. Sinai hospital, Sr. learned he has damage to the white matter in his brain, which can cause memory loss and depression, among other symptoms. At 27 years old, Eric Jr. spoke to his mother about hopefully entering the same evaluations his father had done.

His wishes for evaluation were not able to come to fruition. On August 24, 2018, Eric Jr. died by suicide at age 27.

A coroner came to the home and immediately asked Eric Sr. if Eric played contact sports. She suggested his brain be sent to the UNITE Brain Bank for research. Eric Sr.’s own familiarity with concussion, CTE, and the Brain Bank’s research made it an easy decision.

While suicide is a complex public health concern with no single cause, studies have shown an increased risk of suicide among those who have suffered a single traumatic brain injury. As April and Eric Sr. mourned the loss of their son and awaited the results from the Brain Bank, they reflected on the cascade of effects football can have on those who play it.

“As spectators of the game, we’re cheering on these guys,” said April. “But we’re not really thinking about what they are going through. This is an American sport that everyone loves, but players, coaches, parents, and spectators all have to be more aware of what it can do.”

For Eric Sr., his son’s tragedy raised internal questions.

“With this and what happened to some of my teammates who I played with over the years who took their lives as well, and with what I’m going through personally,” he wondered. “I’m like, was football really worth it?”

After months of research, Brain Bank researchers told April and Eric Sr. they did not find any lesions of CTE in Eric’s brain. They did identify evidence that Eric was suffering from neurocognitive issues due to a widening cavum between the left and right ventricles of Eric’s brain and the erosion of his myelin sheath, damage that usually precedes CTE formation in the brain.

Eric’s parents were not surprised to learn he had potentially worsening brain damage in his brain when he died.

“It gives the gift of closure,” said Eric Sr. “This helped bring some more understanding of why things had to happen like it did.”

Eric’s parents will forever miss the way their son could effortlessly improve their moods and bring light to everything he touched. They hope the ambition Eric held to improve the world can now be channeled in a different way.

Eric Sr. has been in and around football for most of his life. Sports provided him with an overwhelmingly positive experience he hopes every child experiences. But he doesn’t think kids need to play tackle football until they’re at least 14 years old.

Eric wrote a book on education reform. His parents hope his story can supply another chapter on the topic.

“There are a lot of families that think football is a way out,” said Eric Sr. “We have to dispel that myth. Let’s get them involved in STEM, along with a healthy athletic program. That’s what’s going to generate their income and improve their futures.”

Suicide is preventable and help is available. If you are concerned that someone in your life may be suicidal, the five #BeThe1To steps are simple actions anyone can take to help someone in crisis. If you are struggling to cope and would like some emotional support, call the Suicide & Crisis Lifeline at 988 to connect with a trained counselor. It’s free, confidential, and available to everyone in the United States. You do not have to be suicidal to call. If you’re not comfortable talking on the phone, consider using the Lifeline Crisis Chat.

If you or someone you know is struggling with lingering concussion symptoms, ask for help through the CLF HelpLine. We provide personalized help to those struggling with the outcomes of brain injury. Submit your request today and a dedicated member of the Concussion Legacy Foundation team will be happy to assist you.

 

Steve Wallace

Last month would have been my dad’s 80th birthday. I miss him more than I can put into words. While I don’t miss the dementia, the decline, or the painful way his life ended, I deeply miss the man he was. He was my biggest fan and a huge source of my strength.

For years, my parents searched tirelessly for answers about his health. My dad, once the embodiment of strength and joy, began to slip away, leaving us confused and heartbroken. It started in 2015 with small signs: forgetfulness, confusion, and moments of anger. Doctors offered guesses such as Parkinson’s, Alzheimer’s, maybe Lewy body dementia. None of it felt certain.

I remember sitting with them in a neurologist’s office in April 2018, grasping for answers. Desperation gave me the courage to ask a question I had been holding back: “Could this be because he played football for so many years?” The doctor said she didn’t know. But she suggested something unexpected: “Steve, you’re special. When you pass, you should donate your brain to science so we can learn more.”

My dad smiled at the thought but by then, his mind was already slipping. I don’t think he fully understood. He was disappearing, bit by bit.

Football was his first love. Growing up in Seattle, he excelled in wrestling and football, eventually playing under John Elway’s father at Gray’s Harbor Junior College before transferring to the University of Utah. His career ended after a severe back injury, but his love for the game never wavered. He lived for hard tackles and big hits, especially as a fullback. Watching games together, I could see the pride in his eyes when players collided. It reminded him of his own glory days.

(Steve Wallace #31 Gray’s Harbor Junior College 1964)

But that love came at a cost. The hits he celebrated were likely the same ones that stole him from us.

Off the field, my dad built a life full of joy, hard work, and love. He was a police officer turned software sales executive, someone who could light up a room and make anyone feel included. He was always there for me. He came to every game and was present for every big milestone. He wasn’t perfect; his temper and perfectionism often loomed large. But he cared deeply about his family and those around him. I carry his empathy and determination with me every day.

By 2018, everything had changed. At my birthday gathering, he sat quietly, unable to follow conversations. I could see it in his eyes. He wanted to say something but couldn’t find the words. It was devastating. On a later visit in August of 2019, he didn’t recognize me. He lashed out and took a swing at me. He was confused and scared, as I pleaded with him to remember who I was. That moment broke something in me. The man who had always been my anchor was slipping away for good.

In December 2020, after many falls and fire department visits to the home, my mom made the heart-wrenching decision to move him into a memory care facility. By then, COVID had stolen what little time we had left together. When he passed in March 2021, I wasn’t there to say goodbye.

Amid the heartbreak, my mom and I worked to honor his final wish: donating his brain to science. The Concussion Legacy Foundation (CLF) stepped in when other organizations couldn’t, connecting us to the UNITE Brain Bank and Boston University’s groundbreaking CTE research team. Their guidance made the impossible feel manageable.

On March 8, 2021, I reached out to CLF’s founder Chris Nowinski via a LinkedIn message. To my amazement, he replied. By noon on March 9, all the arrangements were made. My dad passed away later that afternoon. Knowing that his death would help others brought us a measure of peace. I am forever grateful to Chris for the quick reply!

Eight months and two family interviews later, we received the results of his study. My dad’s brain showed advanced Alzheimer’s, Lewy body dementia, and chronic traumatic encephalopathy (CTE). This is the now well-known degenerative brain disease caused by repetitive head trauma. The diagnosis explained so much: his temper, depression, and cognitive decline. CTE wasn’t even a term we knew growing up, but it had shaped so much of his life, and ours.

CLF gave us answers and a purpose. They continue to lead the charge in understanding and preventing CTE. Their research has shown that just one year of tackle football before age 12 increases the risk of CTE by 30%. This is not just an NFL or college problem.

My dad understood the dangers, which is why he didn’t let me play until I was 14. I’m grateful for that decision. Today, I advocate for flag football as a safer alternative for kids. Tackle can wait.

My children, thankfully, have chosen different paths. My son has no interest in football and thrives in baseball and running cross country. My daughter plays soccer and though I worry about its physicality, recent rule changes such as banning headers for kids under 12 gives me hope. These changes are a direct result of CLF’s work.

As I watch my kids play sports, I often feel my dad’s absence. He would have been the loudest voice on the sidelines, beaming with pride. I take comfort in knowing that his legacy lives on. Not just in my family but in the critical research that will protect future athletes and their families from the devastation of CTE.

If our story resonates with you, I encourage you to think twice about enrolling your kids in contact sports. Talk to them about the risks and dangers we know about but continue to ignore or not give the attention it deserves.

CLF is doing lifesaving work, and I hope my dad’s story inspires others to support their mission. Together, we can honor the past while building a safer future in contact sports.

Fulton Walker

Before Bo Jackson, Deion Sanders, Tim Tebow, or Kyler Murray blurred the lines between professional football and baseball, there was Fulton Walker. Walker grew up in Martinsburg, West Virginia and started playing tackle football at eight years old. He raced past defenders in youth football and shined on the baseball diamond. His exploits became the stuff of legend. Walker’s son Kevin was born when Fulton was in high school, so Kevin was well versed on his dad’s athletic prowess by the time he grew up.

“I was sitting in one of my P.E. classes and the teacher tells me how my dad was the best athlete to ever come out of West Virginia,” Kevin said. “He was saying, ‘I watched him play a baseball game one day and rob a home run and then that night run a punt back.’”

Walker was a four-sport letterman for Martinsburg High School and a key player at home as well. He would rush back home from games and track meets to mow his family’s yard and to split wood for a fire.

After he graduated from Martinsburg, the Pittsburgh Pirates selected Walker in the 25th round of the 1977 MLB Draft. He opted instead to attend West Virginia University, where he watched many football games as a kid and where he could play both football and baseball.

Walker became one of the first Black athletes to play for the WVU baseball team. In football, he played running back and returned punts for the Mountaineers as a freshman. He made headlines his first season by returning a punt 88 yards for a touchdown against Boston College.

He switched to defense his junior season and held a larger role on the team. Coach Don Nehlen arrived at WVU for Walker’s senior season and immediately counted Walker as one of his favorite players.

“You have certain guys on your football team that really enjoy the game – it doesn’t matter if it’s Monday, Tuesday, Wednesday, Thursday, Friday or Saturday, they like to play and Fulton was one of those guys,” Nehlen would later say. “You’d go out there on Tuesday and he was grinning and then on Wednesday he was grinning. He was very popular on our football team.”

Walker’s popularity was not contained to the Mountaineers locker room. Kevin Walker saw his dad get stopped by friends and strangers his whole life. Fulton could not go to a cookout or a grocery store without someone wanting to stop and chat with the local legend.

“He was always pulled one way or another for conversation and one minute turned into 30 minutes and we’d be hours late for things. And he would always stop. He always had time,” Kevin said. “He’d never act like he was Superman. You know, he was just a regular old guy from a little country town.”

Walker’s senior season at WVU was a huge success. He finished with 86 tackles and two interceptions for the team in a season that would be credited with turning the football program around. The Miami Dolphins selected Walker in the 6th round of the 1981 NFL Draft.

His cool, upbeat, down-to-earth personality made him just as much of a locker room favorite in Miami as he was in Morgantown. Walker’s next-door neighbor in Miami was Dolphins star quarterback Dan Marino. Walker and Marino bonded over the rivalry between their alma maters, Walker’s West Virginia and Marino’s Pittsburgh, which is serendipitously known as “The Backyard Brawl.”

Walker played five seasons with the Dolphins as a cornerback and a special teams ace. His career highlight came when he became the first player to return a kickoff for a touchdown in a Super Bowl when he sprinted 98 yards for a touchdown to give the Dolphins a 17-10 lead in Super Bowl XVII in 1983.

No one could catch Fulton Walker that day, or most days for that matter. But Kevin did. Once.

“We were walking to my aunt’s house and he was like, ‘Man you wanna race?’ and I said let’s do it,” Kevin said. “And we ran pole to pole and I beat him.”

Walker tried to put an asterisk on the defeat by claiming he did not have the right footwear for the occasion. But 13-year-old Kevin let everyone in his junior league baseball dugout know he beat the Super Bowl record-holder.

After two more injury-riddled seasons with the Los Angeles Raiders, Fulton Walker retired from football in 1986. Playing primarily special teams, Walker only saw the field for a handful of plays each game. But the impacts he was involved in on kick and punt returns count among the fastest and most violent in the sport. After football, Walker had his ankles fused, his vertebrae fused, and took more than a dozen pills a day to alleviate pain in his neck and to help him sleep.

“His injuries, you’d think it was from motorcycle wrecks or something. But he just played football. So yeah, you’re tough. But your body can only take so much,” Kevin said.

With football behind him, Walker went back to WVU to earn his master’s degree in Industrial Safety. Kevin says Walker was extremely sharp and could handle a very large workload. For years he managed a trucking company in West Virginia and then became a teacher and coached football and baseball back at Martinsburg High. He satisfied his itch to stay physically active by playing golf and softball as often as he could.

Walker then started to struggle with his memory. He would forget where he put his keys, leave his car running, go to the store and forget why he went by the time he got there, and repeat himself in conversations. These short-term memory issues affected his ability to work. He would forget how to use certain computer systems he mastered the week before. Eventually, the state of West Virginia determined he needed to go on full disability.

The memory battles caused Walker to get frustrated with himself. He took his frustrations out on others and slipped into depression.

“My problem is I can’t multi-task. I can’t get my brain full of stuff because it puts me in a place of confusion,” Walker said in an interview with Katherine Cobb in September 2016. “Stuff in the present I can have problems with, but stuff in the past, I still have good recollection. I have to write things down now, so I remember. It is what we guys have been going through but we didn’t understand what was going on. It’s been frustrating and overwhelming sometimes.”

When Kevin saw his dad almost daily, his decline was less noticeable. But when he moved away to North Carolina and saw his dad less frequently he noticed how steep his fall was. Kevin knew his dad needed help and set up appointments for neurological testing in Orlando and Atlanta. Those tests showed Walker suffered from dementia, which qualified him for benefits from the NFL’s “88 Plan,” named after Hall of Fame tight end and CLF Legacy Donor John Mackey.

On the night of October 11, 2016, Kevin called his dad to let him know he would need to switch cars with him for Kevin’s upcoming work trip. Kevin arrived the next morning and grabbed the keys his dad had left out on the counter. He chose to let his dad sleep rather than to say goodbye. As Kevin was driving home from the meeting later that day, he received a call that Fulton was being rushed to the hospital.

Kevin drove to meet his dad at the hospital, but it was too late. Fulton Walker was pronounced dead on October 12, 2016 at 58 years old. He died from a heart attack.

Walker’s funeral in Martinsburg was full of testaments to his humility, generosity, and ability to make those around him feel like they, not him, were the Super Bowl record holder in a conversation.

Kevin and the family decided to donate his brain to the VA-BU-CLF Brain Bank after his death to see if his cognitive and emotional problems could be attributed to Chronic Traumatic Encephalopathy (CTE). Dr. Ann McKee, Director of the Brain Bank, diagnosed Walker with mild CTE in his dorsolateral frontal and temporal cortices.

Fulton Walker loved football too much for the family to hold ill will against the sport for its role in his CTE. Instead, Kevin believes his dad would have opted to play flag football as a kid and would advocate for the next generation to do so as well. Kevin points to Barry Sanders’ training in flag football to increase his elusiveness to show how playing flag football improves ballcarriers’ open-field skills.

Kevin knows that playing pro football when his father did and now are two different financial realities. He thinks today’s NFL players have the liberty of shortening their careers and protecting themselves in a way his father’s generation did not.

To other children who have parents that spent a life in contact sports and who might be at risk for CTE, Kevin urges you to stay aware, and take action to get help sooner than later if you see signs like mood swings or forgetfulness.

Kevin will always remember his dad for his work-ethic, humility, laid-back personality, and as a pioneer for two sport athletes.

Are you or someone you know struggling with lingering concussion symptoms or possible Chronic Traumatic Encephalopathy (CTE)? We support patients and families through the CLF HelpLine, providing personalized help to those struggling with the outcomes of brain injury. Submit your request today and a dedicated member of the Concussion Legacy Foundation team will be happy to assist you.

David Walters

David was born on March 3, 1980, at 9:06 p.m. He weighed 10 lbs. 1oz and was 22 ½” long. My first born and only son. My dream came true: I was a mom! As I held and cuddled my sweet baby, for the first time alone, I whispered how much I loved him and all the plans I had for him; stroller walks to the park, birthday parties, trips to the zoo, and the vow to always protect him from any harm. He was my little angel, my blessing from God. I was a stay-at-home mom. I was going to be there to see all his firsts!

David was a good-natured person. He was kind and gentle with others with a good sense of humor. He was a devout man of God, protective of his family, adored his niece, a true friend, loved animals, and had a bonding way with autistic children. David took strong interest in several sports at a young age beginning with baseball, then paintball, mountain biking, weightlifting, and football.

 

David began midget football at age 11. When he was a young teen, his grandfather instilled in him the importance of finding something he liked to do, be it a sport or occupation, and giving it his all. David loved football and he learned that weightlifting would make him better at it, so lifting weights became a passion. David’s excellence in the weight room at Cherokee High School in Marlton, New Jersey earned him offensive playing time on the football team all four years.

His hard work in high school paid off. He was offered 11 Division I football scholarships, including one Big Ten offer. David committed to the University of Iowa the summer before his senior year of high school.

When a new coaching staff began in Iowa, David decided to transfer to Wake Forest University in North Carolina. He began his career as a Demon Deacon in 2000. He continued to excel in the weight room and became an impact player, receiving and delivering big hits every game. He stood out for his last two seasons playing offensive tackle.

 

During the 2002 season, David received a severe concussion during a game but somehow continued playing to the game’s end.  He was cleared medically to play the next game, the remainder of the season, and the Seattle Bowl game. I think this final season was the beginning of the end.

After graduating from Wake Forest with a degree in sociology, David went on to play professionally for the Canadian Football League’s Montreal Alouettes.  When the CFL decided to let go of almost all their American offensive players, David moved to central Florida where he pursued a career in weight training and nutrition. David did everything he could to stay on his feet, but he struggled to manage the pain he accumulated from years of football.

 

Eventually, David re-settled in New Jersey. He married and began a new profession as a bricklayer and stone mason. His pain continued, though, and he was caught in a slow but nightmarish spiral of pain and addiction to pain pills.

In 2008, when David was 28, he was diagnosed with Post-Concussion Syndrome.  His neurologist described the years of damage as “a lightning storm” in his brain. Talking through David’s concussion history, they estimated 11 concussions or more over his career. He was at high risk for developing serious cognitive issues later in life, and he was facing incredible pain.

Within three years, David’s marriage crumbled. He moved back home with me in 2012 as his pain grew worse. David developed rheumatoid, osteo, and psoriatic arthritis at a young age because of the abuse his body took, and treatments offered little relief.  David underwent three unsuccessful surgeries to fix his knees. Then an unsuccessful elbow surgery, leaving him with no cartilage and the elbow of an 80-year-old man. He was told he needed shoulder surgery but couldn’t get around to it because of the constant pain in his head and body.

Through all of this, David’s memory declined to a frightening stage. His difficulties went from “What did I eat for my last meal?” to “I don’t remember Dad giving me this living room set for when I am able to move out on my own again.” His moods grew worse, and he felt extreme irritation over trivial matters. And there were seizures. More and more small seizures, four Grand Mal Seizures, and increasing aggression and violent behaviors.

 

The kind, gentle, patient David that I knew, my true son, was almost gone.  The sweet, appreciative, compassionate David, barely a part of who he’d become. His words in the beginning, when he was thinking about where he felt his life was going, still cause me to cry.

“If I ever have a son, I will never let him play football.”

“Mom, you know one of these seizures, I might not pull through. I don’t want to live like this anymore. I thought of killing myself twice now, but only stop because I don’t want you to come home and find me that way. I don’t want to hurt you Mom.”

David’s list of symptoms grew. Difficulty thinking, planning, and carrying out tasks. Short term memory loss, confusion, mood swings, and impulsive/erratic behavior. Loss of motor skills, tremors, and loss of balance. Aggression, irritability, suicidal thoughts, depression, and apathy.

“You’ve done everything to help me. You take me to all my doctor appointments. You are always encouraging me. You are the best Mom God could have ever given me. We’re a team. I love you, Mom. Thank you, Mom. You love me for me. You help me see things in a different light. I can’t stand the pain in my head. You could never understand the pain in my head. It won’t stop. I pray for God to take me.”

 

In July 2016, David’s internal rage had become almost completely external.  I had to do the most difficult thing in my life. I could no longer care for my slowly dissolving son. I could no longer allow him to continue living in my home. He had to go out on his own, as pathetic as that now feels to say.

He struggled but survived on his own for two more years.  I had a pipeline to God’s ears more than ever.  Please Lord, make David’s pain stop; please Lord, help him, please, please, please.

David’s downward spiral started because his pain from concussions and other injuries was too much to bear. The college medical staff administered opioids, which we know can lead to addiction. Then, controlled opioids by doctors outside of collegiate walls; addiction. Rehab. Clean. More pain. More opioids. Addiction. Clean. Surgeries. Confusion. Rage. Pain. Out of control pain. Accidental opioid overdose …

On Monday, July 23, 2018 at 9:15 p.m., four days before my 61st birthday, I received every parent’s nightmare phone call. My son, my boy, my beautiful boy, my baby, was gone. God answered my prayers and David’s prayers; David’s pain was no more.  No more pain in his head, no more pain in his broken body due to football. He is with his beloved grandparents and great-uncle.  He is living in glory with our Lord. This is not how I wanted this prayer to be answered, in this way, but it is what God had planned for my David.

 

I am still, a year later, trying to accept my loss. I can only hope to help others who are dealing with PCS and suspected CTE in their loved one, to let them know they are not alone. I am here to help in anyway I can through listening and sympathizing with my whole heart. To honor David in the way he would have wanted; to help others on his behalf. The last outward sign of my love for him. David wanted to donate his brain to science, but we were unable to follow through on this wish. I feel David would be happy to know I am trying to spread the word and help others like him. When David passed, in lieu of flowers, a request for donations in his name to the Concussion Legacy Foundation was set up. He would be proud that so many good people who loved him have donated.

David found his soul mate the year before he passed. He was to start his dream job the day after he passed, in a hospital where plans for a flourishing new career were to begin. A few days after David passed, he came to me in the most vivid dream. I try to remember it in my times of uncontrollable grief; he is standing in front of me, smiling, arms wide open saying, “I’m ok Mom.” I know he is, but I am not. I am grateful for all the Concussion Legacy Foundation has, is, and will be doing for our afflicted loved ones, and for us, their parents, family and friends.

 


Are you or someone you know struggling with lingering concussion symptoms or what you believe may be CTE? We support patients and families through the CLF HelpLine, which provides personalized help to those struggling with the outcomes of brain injury. If you are seeking guidance on how to choose the right doctor, find educational resources, or have any other specific questions, we want to hear from you. Submit your request to the CLF HelpLine and a dedicated member of the Concussion Legacy Foundation team will be happy to assist you. 

 

Ben Williams

“I think Ben got up that morning thinking he could cook.”

In October 2019, Linda Williams’ husband Ben Williams had just returned to their home in Jackson, Mississippi from a reunion with other Buffalo Bills alumni. Linda says Ben, 65 at the time, came back feeling like his younger self.

“He was stuck in that time period of back when he played football,” said Linda. “I couldn’t get him back. I tried to get him back, to talk about ‘now.’”

30 years earlier, Ben was the quintessential morning person and the engine of the family – often making breakfast for he and Linda’s three children and getting the family’s day started. But the Ben that woke up with intentions of making breakfast in October 2019 was no longer capable of doing much of anything by himself.

Linda woke up that morning to the sound of their dog barking, which was normal. The smoke she smelled in the hallway was not. She quickly realized Ben’s attempt to cook had gone disastrously wrong. She rushed to get them both out of their house while neighbors called the fire department. Once outside, Ben and Linda watched their house burn down.

“That didn’t faze him that much,” said Linda. “At that point, he was out of it.”

 

Mr. Ole Miss

Born on September 1, 1954, Robert Jerry “Ben” Williams grew up in Yazoo City, Mississippi. He and James Reed were the first African American student-athletes to sign football scholarships with Ole Miss in 1971.

Linda met Ben her freshman year at Ole Miss. Ben showed an interest in Linda, but he was two years older than her. She was weary of upperclassmen and didn’t care about football in the slightest. But Ben’s nickname – “Gentle Ben,” after the titular character from the hit 1960s TV show – was no misnomer. She eventually gave in to his persistence and the two started dating.

“From the time I met him, he was always helping people,” said Linda. “He was very outgoing, real nice, and laughed a lot.”

Ben was a standout in every way at Ole Miss. He earned first team All-American honors as a defensive end in 1975, was elected as the first African American “Mr. Ole Miss” in school history and earned his degree in Business Administration from the school in 1976.

The Buffalo Bills selected Ben in the third round of the 1976 NFL Draft. Ben and Linda married that same year before making the nearly 1,000-mile trek north from Oxford to Buffalo.

“Dollar Bill”

Over 10 seasons in Buffalo, Ben Williams amassed 52 sacks, played in three playoff games, and was named to the 1982 Pro Bowl team. Pro Football Hall of Fame defensive end Bruce Smith arrived in Buffalo in 1985 and credits some of his success to Ben’s tutelage.

“I certainly owe a lot to Ben for embracing me as a young rookie coming into the league,” said Smith to the Buffalo News in 2020. “And not only on the field, but off the field as well.”

Ben’s work ethic made him a football star, but his industriousness was not reserved for football season. Ben returned home to Mississippi every offseason with the Bills to work for a bank in Jackson. For his off-the-field hustle, Ben’s Buffalo teammates called him “Dollar Bill.”

Ben retired from football after the 1985 NFL season. He, Linda, and their three children, Rodrick, Aisha, and Jarrett, relocated to Jackson.

Once in Jackson, Ben started his own company, LYNCO Construction. As busy as he was, Ben maintained the generous spirit he had at Ole Miss. He was very active in local charities, especially those benefitting children.

“He never did stop,” said Linda. “Anytime anybody needed something, they would call Ben and he was there.”

 

A Different Ben

Ben had always been easygoing and unflappable. If he ever had a bad game, he processed his frustration by watching hours of film to correct his mistakes.

But as Ben entered his 40s, his anger began to flare up. His whole life he had been the big man on campus and a beloved teammate. Little by little, Linda noticed some of his closest friends stopped hanging around as much. Later, she learned those friends had not left Ben – Ben had rudely pushed them away.

Linda experienced this new side of Ben, too. When she came home from work, she often noticed Ben stewing in anger in a way he never had before. The mood swings were so alarming and so out of character that family and friends no longer recognized the Ben they once knew.

In the next decade, Ben’s mood swings lessened, and he became more docile. As Ben mellowed, he started experiencing a new set of challenges.

Ben was struggling cognitively, and it sometimes took him days to recall the answers to some of Linda’s questions.

At this point of Ben’s life, re-living the past was much easier than managing the present. He struggled to remember anything short-term, but he came alive in conversations about his days at Ole Miss and with the Bills. He loved watching “Sanford and Son” and old John Wayne and Clint Eastwood movies – anything with a familiar plotline he could follow.

Ben’s driving became problematic as time went on. He routinely got lost on his way to events. Friends often told Linda they saw Ben aimlessly driving around town and were worried about him.

“He wouldn’t tell me he needed help because he didn’t want me to know,” said Linda. “He just pushed himself and made himself do things.”

Ben hid the full extent of his issues for as long as he could. After the house burned down in 2019, Linda and Aisha were trying to reconcile the family’s sudden financial problems – as “Dollar Bill” could no longer handle finances like he always had. They realized Ben had not been going to work every day for nearly 10 years like he said he was.

 

“Be Gentle”

Ben’s physical health and cognitive state eventually required full-time care. Linda quit her job to fill the role.

After the fire, many of the friends who had become strangers since Ben’s 40s soon came back around to visit. They laughed with Ben through old memories and old games. For all the joy, Linda remembers many of Ben’s old friends leaving their home in tears over the condition he was in.

In April 2020, Ben suffered a stroke and was placed in a rehabilitation center. The COVID-19 pandemic had struck a month earlier, so the family’s ability to visit him was limited to speaking to him through a glass window.

On May 17, Linda visited him in the evening. She repeatedly called his name to get his attention. Finally, Ben turned to the window, looked at Linda, and said, “Hey, Linda. I see you.”

Ben Williams died the next day.


Towards the end of Ben’s life, a group of retired ex-players in Mississippi reached out to Linda and recommended she donate his brain to the UNITE Brain Bank for CTE research. Linda was vaguely aware of CTE and had seen news reports about former NFL linebacker Junior Seau’s CTE diagnosis years earlier. When Ben died, she agreed to donate his brain.

Months later, researchers informed Linda that Ben had between stage 3 and stage 4 (of 4) CTE. The severity of Ben’s CTE surprised Linda. Ben had never talked about his concussion history or raised any concerns about having CTE.

“He was strong,” said Linda. “Even though he was having those problems, he was fighting it.”

Linda wants to share Ben’s story and CTE diagnosis to help explain to those who knew Ben why he may have exploded on them and alienated them years ago.

“I want the people who thought he was crazy to know that he was not,” said Linda.

Sharing his story also honors Ben’s lifelong legacy of helping others. Linda knows there are other spouses like her and other former players like Ben who could learn from their journey. Armed with the knowledge she has now, she says she would encourage spouses worried about a loved one with suspected CTE to seek professional care.

 

Linda also urges other loved ones of suspected CTE to pray, to practice empathy, and to remember Ben’s first nickname.

“Be gentle,” said Linda. “Be calm, and don’t fault him.”

Stanley Wilson Jr.

Stanley Tobias Wilson Jr. was a compassionate, talented, and courageous man who died Feb. 1, 2023, at the age of 40. He was the blessed, beloved, and only child born from the union of Stanley Tobias Wilson Sr., and Dr. D. Pulane Lucas. Stanley was born on November 5, 1982, in Oklahoma City, about 20 miles from where his father played football at the University of Oklahoma. Stanley later lived with his parents in Cincinnati, where his father was a star NFL running back with the Bengals. Stanley would eventually move to Oakland, Calif. with his mother.

Stanley lived in the Bay Area while his mother completed her undergraduate degree. When she decided to relocate to New England to further her education, Stanley’s paternal grandparents, Henry and Beverly Wilson, became his loving and legal guardians in Carson, Calif. This move allowed Stanley to remain close to his father, relatives, and numerous friends while attending Frederick K.C. Price Christian School. At Price, at the age of 13 in the 9th grade, he was introduced to football, and he began to thrive as an athlete.

Growing up, Stanley also spent time in Boston with his mother, who was studying at Harvard University. He enjoyed serving as a ball boy for the Harvard University basketball team, attending classes with his mother, and walking around the university and Harvard Square. But a brutal winter, combined with a longing for athletic opportunities and the entertainment and holidays at his grandparents’ home led him back to Carson in the custody of his grandparents.

Upon his return, Stanley enrolled in Bishop Montgomery High School in Torrance, where he became a standout football player as a safety and member of the track team. He also performed in theater productions, served as a calculus tutor, and was crowned homecoming king.

Stanford University recruited Stanley to play defensive back for their football team from 2001-2004. As a senior, he recorded career highs for both tackles and pass breakups, earning an honorable mention on the All-Pac-10 team. Stanley also proved to be a dominant sprinter on the Cardinal track team, posting some of the school’s best results in 100 and 200-meter events. His 100-meter time of 10.46 is still the fourth-fastest all-time by a Stanford athlete.

Stanley’s peers elected him to be a senator in Stanford’s Associated Student Body. He pledged Omega Psi Phi Fraternity (Alpha Mu Chapter) and served as vice president (2003-2004). Stanley became a mentor in the Children’s Visitation Program, where he focused on inspiring youth with incarcerated parents to become positive assets in society. In 2005, Stanley graduated with a B.A. in Urban Studies.

The Detroit Lions drafted Stanley in the third round of the 2005 NFL Draft. He focused on becoming a premier football player and second-generation NFL player. In 32 NFL games, Stanley Jr. racked up 86 tackles, eight pass deflections, and one forced fumble. In 2007, he was placed on injured reserve due to a knee injury, then re-signed to a one-year deal. Unfortunately, he tore his Achilles tendon during an exhibition game against the New York Giants, ending his career in the NFL.

Regardless of his situation, Stanley made time to volunteer and help those in need. From 2005-07, he was a motivational speaker, inspiring high school students to focus on education, health, fitness, and achieving their goals.

Stanley cherished spending time with family and friends, driving, reading, conducting research, and listening to music. He traveled the world, to places like the Caribbean, Italy, South Africa, Australia, Israel, and Egypt. He was an avid learner with a brilliant mind. He knew a quality education, real-world experiences, and a network of friends and mentors were critical for him as he transitioned into a successful post-NFL career.

In 2008, Stanley completed a certificate at the Aresty Institute of Executive Education and the Wharton Sports Business Initiative’s Business Management and Entrepreneurship Program. The Wharton program at the University of Pennsylvania was sponsored by the NFL and the NFL Players Association.

In 2009, Stanley completed The NFL Player Development Program: High Growth Entrepreneurship at Northwestern University. The same year, he enrolled in the Hunter-Bellevue School of Nursing in New York City. He earned his nursing degree in 2014. After graduation, Stanley worked in the healthcare field in New York and later relocated to Portland, Oregon. He eventually returned to Carson to live with his grandmother.

Throughout his life, Stanley was a team player who cherished his friendships and valued his relationships with teammates and fraternity brothers. He courageously accepted new challenges with a strong faith in God and love of family. Stanley greeted each new day resilient with hope, optimism, purpose, and drive. He never stopped longing for the life that he knew he deserved.

Yet, over time, Stanley’s behavior reflected the signs of his struggles with the trauma of same gender childhood sexual abuse, mental illness, drug addiction, and indications of chronic traumatic encephalopathy (CTE), a condition that links brain degeneration to repeated hits to the head. Having been deemed incompetent to stand trial, Stanley spent the final months of his life in the custody of the Los Angeles County Sheriff’s Department (LASD). He died under suspicious circumstances.

Stanley Wilson Jr.’s family would like to thank the Detroit Lions, Stanford University, Bishop Montgomery High School, Frederick K.C. Price Christian School, and many of Stanley’s friends and teammates who have shared their condolences, kind words, and memories.

 

Jeff Winans

Beloved husband, father and friend

Jeff was 6’5”, well built, and extremely handsome, reminding me of a Greek God with his curly black hair, deep brown eyes and a sculpted black beard. His smile and laugh were infectious and would brighten up any room. He was born in a small agricultural town in North Central California called Turlock, where melons, turkeys, nuts and wine were their major source of income. Blue Diamond Almonds and Gallo Winery’s corporate offices were just up the street in Modesto.

His father, Glen, had a local State Farm agency and his mother, Janice, was a homemaker. He grew up with two older sisters, Shari and Sandra. Everyone knew everyone in Turlock. Jeff excelled in sports, playing basketball, football and track at Turlock High School. Upon graduating from high school in 1969, he went to Modesto Junior College in Modesto, California, where he became the only six-letter winner in basketball and football. The college also claimed, in 1993, at his induction into their Hall of Fame, that he still held the record for the most unpaid parking tickets.

In his second year at Modesto Junior College, his lifelong dream came true. He was offered a scholarship to USC in Southern California to play football for Coach John McKay.

His first year at USC was a real eye opener, especially coming from a small agricultural town. He struggled with his academics and the big city life. However, in his second year there, he came to life on the field and was moved to first string. That year, he received the 1972 “Most Improved Player” award from Coach McKay.

His USC football team went on to become National Champions, winning the Rose Bowl in 1973 against Ohio State. Thirty three percent of the players were drafted to the pros. Jeff was second round draft pick (#32) and went to the Buffalo Bills. He played six seasons with the NFL. He loved the game and had a strong connection with his teammates.

Jeff started nine games in 1973 as defensive tackle. A torn ACL took him out for part of the season. In 1976, Jeff was traded twice, first to the New Orleans Saints where he played only three games, and second to the Oakland Raiders with Coach John Madden. At that time, Madden decided to move him to offensive guard. An unexpected trade took him to Tampa Bay in 1977.

Jeff fit in well at Tampa and McKay (his former USC Coach), kept him at offensive guard. December 12, 1977, after being 0-26, the Bucs won their first game against New Orleans. Jeff was back on his game but it was short-lived. In 1978 he sustained major back, neck and more head injuries–forcing him to sit out the rest of the season.

The first time I saw Jeff, he was visiting some of his friends from Buffalo at the apartment complex I lived in in Clearwater, Florida. My roommate introduced us at a local bar June of 1979. We started dating and in August during an exhibition game, his foot was injured and he was waived by the Bucs. A few months later he was picked up again by The Oakland Raiders. By that time Jeff and I had fallen in love and he asked me to go with him.

Our move back to California was an exciting one and we took up residence in Modesto. Jeff worked very hard and was back on track but in the 1980 Season, Jeff was injured with a crushed ankle. The Raiders went on to win Superbowl XV. July, 1981, after refusing to sign a waiver on his ankle and back, Jeff’s career as a professional football player ended. It was a crushing blow for him and I was thrown into the role of sole support of the family. Our talk of marriage was hard for him because he wanted to be able to support me the way he had in the past. Two months later a long weekend trip to Reno to see Smokey Robinson turned out to be a surprise wedding that he had been planning for months. We were married December 19, 1981.

He was offered a job at Modesto Junior College, but embarrassed after three days, he had to quit. His headaches, depression and physical injuries from football took a toll on him. His Sleep insomnia became worse. He started seeing a psychologist, and we worked through the next few years. In 1984, things were looking up so we decided to try and have a baby. November of 1984, Jeff sustained a life threatening gunshot accident while we were moving and wasn’t expected to live. A few days later the blessing came when I found out I was pregnant with our only child Travis, born August 2, 1985, our greatest blessing.

After multiple surgeries, infections and bankruptcy, the fall of 1988, we decided to move back to Florida. A few years later, Jeff’s right leg below the knee was amputated. He met Michael Reith with St. Pete Limb and Brace who fitted Jeff with a prosthetic and Jeff started volunteering with Mike, talking to other amputees. It was the first time in a long time I had seen Jeff so excited.

In 1992, he founded Day For Our Children, Inc., a 501(c)(3) to help abused, neglected kids and families who fell thru the government cracks or whose children needed surgeries that insurance companies wouldn’t pay for. A year later, he brought Outback, GTE wireless, Continental Airlines and ASI Building Products on board as major sponsors. We didn’t know how to raise money, but Jeff knew golf and he started some of the first Celebrity Golf Events in the Tampa Bay area. We met Tom and Lisa McHale at a fundraising event in 1993. Lisa and I have recently shared those photos and reflected on those wonderful times. In 1996 he became President of the Local NFL Alumni Chapter and was able to recruit more former players in the area to join. He was an excellent president and I was so proud of him. But his headaches and back and arm pain, numbness, and insomnia continued. It was more than he could handle and in 1998 I took over as President of the foundation.

Our son Travis started high school in 1999 and like his Dad, excelled in basketball. Travis was Jeff’s everything and he was able to work with him on his game and he was a wonderful father. By 2001, I was noticing more memory lapses, which I attributed to the prescription drugs he was on. Conversations we would have he didn’t remember which would turn to anger and frustration. His decision making and spending got out of hand and he began overdrawing our accounts. In 2002, he decided to get help and was diagnosed with Manic Depression/Bi-Polar and Borderline Personality Disorder. The Doctor put him on Lithium and Wellbutrin XL. It seemed to work for a while, and then he became more erratic with obsessive compulsive behavior making sure everything was in its place at all times. For a few weeks at a time, I would have my loving Jeff back and the loving wonderful man I knew. Then without warning, he would explode. He would have to write everything down four or five times. He would make plans and then stiff people. He became a recluse except for only a few close friends.

We separated in October, 2005, and he moved back to California. We stayed close and I still worried about him all the time. April, 2007, our son Travis decided to move out to California to finish school and play football. I was so happy that he and Jeff could be together again and the family bond began to reignite.

May of 2007, I was housesitting at my girlfriend’s home and came upon a TV show called HBO’s Real Sports with Bryant Gumbel. Bernie Goldberg was interviewing a young man named Chris Nowinski, author of Head Games, about his advocacy work raising awareness of the devastating consequences of sports concussions.

As Chris described the symptoms and long-term side effects of multiple concussions and repetitive hits to the head, a large knot in my stomach took me back to the deadly emotions over the years that at that time, had taken my marriage to a point of no return. I began to question if the emotional and behavioral problems that Jeff had been experiencing most of our married life were not what I thought they were, but possible after effects of his eleven-plus concussions and repetitive hits to the head, from playing professional football. I needed to know more about these concussions, so I found Chris on the internet and emailed him. Within twenty-four hours, he emailed me back and we set a time for a phone conversation a few days later. I told him about our story and that people have no idea what the families go through. He encouraged me to come to Washington DC for the Press conference and hearings. I was shocked to find so many other families going through the same thing.

Over the next three years, I became a sponge learning about concussions and I knew it was God that directed me to that HBO channel because if it hadn’t been for Chris’s interview, I never would have thought that Jeff’s problems could have been attributed to concussions.

In 2010, Travis moved back to Florida and Jeff and I started to re-kindle our romance. I was able to get Jeff into rehab at The Summit Recovery Lodge in Utah, June 2010. It was there Jeff found his spirit again. February 2012, Jeff flew here for a visit. He decided to make the move back to Florida. Travis was so excited to have his Dad back here. We both missed the family unit and our love for each other was stronger than ever. October 2012, on a two week visit with him in California, we decided to tell Travis we were back together and made plans to remarry, March 2, 2013.

But God had a different plan and on December 21, 2012, he took Jeff home. He was the love of my life; a kind, sensitive, loving man and my best friend. I know when he passed there was love, peace and joy in his heart. My goal now is to educate, promote the research and help as many families as I can. It’s an honor to share our story and I want to thank Chris for all the hard work and forming the Concussion Legacy Foundation. Together we are one.

To learn more about Jeff and Brandi’s story read Brandi’s memoir, The Flip Side of Glory, on Amazon, Kindle and Nook.