Tom DeLeone
DeLeone was considered too small to play offensive line in the NFL, was discarded by three teams in his first two seasons, and lost his first wife to cancer in his second year as a Brown. Despite facing a mountain of adversity, DeLeone pressed on to become a two-time Pro Bowler and a member of the Browns Hall of Fame.
Born in Ravenna, Ohio, in 1950, DeLeone graduated from Theodore Roosevelt High School in Kent, Ohio in 1968. He attended Ohio State University and was coached by the legendary Woody Hayes. His play and leadership earned him Buckeyes team MVP honors his senior season.
“He was just a great teammate. If you were going to get in a fight, you wanted Tom on your side,” said fellow Browns lineman Doug Dieken.
Drafted by the Cincinnati Bengals in 1972, DeLeone was later traded to the Atlanta Falcons and traded again to the Houston Oilers. The Oilers cut him before the Browns signed him in the middle of the 1974 season. He quickly became the Browns’ starting center, a position he’d hold for the better part of a decade.
“He had all the linemen’s backs, and if anything would go wrong, he was the first one to be there to take care of them. He was the ultimate teammate,” said former Browns teammate Cleo Miller.
DeLeone’s performance and personality cemented his role as a leader on the Browns’ famed “Kardiac Kids” playoff teams in the early 1980’s. He was also a dedicated member of his community, serving as a volunteer for his neighborhood Medina Police’s special unit.
After retiring from football in 1984, DeLeone started a career as a criminal investigator with the US Department of Treasury. He dealt with a variety of fraud, drugs, and anti-terrorism cases, including serving on the FBI Joint Terrorism Task Force at the 2002 Winter Olympics in Salt Lake City, Utah.
He retired after 23 years of service at age 57, the mandatory age to retire. DeLeone quickly found retirement boring, so he filled his days substitute teaching and coaching high school football in Park City, Utah.
In 2011, while driving home with his son, DeLeone suddenly became completely disoriented and didn’t know where he was. Doctors later found a large tumor on his brain and diagnosed him with Stage 4 brain cancer. His surgeon told him his attitude would dictate his prognosis.
Anvil Head was up for the challenge.
“I ride my bike 25 miles a few days each week. I’m not giving in to this,” said DeLeone in 2011.
His relentless spirit followed him to his post-football career and all the way through his battle with cancer.
“Nothing scared him. Even when he told me about the cancer, I could hear it in his voice. No feeling sorry for himself. He’s just determined,” said Dieken.
After fighting cancer for nearly five years, DeLeone passed away on May 22, 2016 in Park City at age 65. Before his death, DeLeone asked for his brain and spinal column to be studied at the Boston University CTE Center. Researchers later diagnosed him with Chronic Traumatic Encephalopathy (CTE).
Often, CTE is mistakenly connected to the number of diagnosed concussions an athlete suffered in their career. The DeLeone family hopes Tom’s CTE diagnosis will inform parents about the risk of repetitive nonconcussive impacts causing CTE. DeLeone spent decades playing as an interior lineman and was exposed to countless hits to the head over his life in football, likely contributing to his CTE.
He will forever be known as a loving father and husband, a dedicated teammate, and an upstanding citizen.
Taylor Dever
Taylor had a beautiful way about him. His large stature was shadowed only by his giving heart. He was always there to support, to listen, and to lend a helping hand. He was quick-witted and his sense of humor was infectious. His knowledge, wisdom and insights were admirable and made most people stop and contemplate what they just heard. His smile could brighten any day. He truly cared for his family, friends, and everyone he encountered. The best stories about Taylor come from times spent with his loved ones.
Taylor was raised in Nevada City, California, a small town about 90 minutes west of Lake Tahoe in the Sierra Foothills. He loved and appreciated his community and was grateful for the support he received in return.
Taylor’s time at Nevada Union High School gave him the opportunity to develop lasting friendships. Prior to his freshman year at NUHS, Taylor had never played tackle football. He became a student of the game, both on and off the field and always strived to learn and improve. Taylor had great natural athletic ability and he excelled at everything he tried including soccer, basketball, and baseball. But football ultimately rose to the top. Nevada Union had a successful athletic program full of people who supported Taylor’s growing football career.
Taylor’s success on the field led to him being blessed with the choice of over 16 Division I scholarship offers. He ended up accepting a full athletic scholarship to the University of Notre Dame. He chose Notre Dame based on the quality of education, integrity of teammates and staff, the opportunity to contribute to a storied program, and to accomplish a lifelong dream! After graduation from NUHS in 2007, he was off to South Bend, Indiana, to accomplish his next goal.
At Notre Dame, Taylor played on the offensive line, starting at tackle his last two years, and was named game day captain twice in his senior season. Taylor watched the game with a different eye, reviewing and analyzing every play. He enjoyed the camaraderie of the team working together as one unit. His college coach once noted in a press conference, “Taylor would play if not one fan showed up for the game.”
Taylor valued the bonds he created with both teammates and students at school. It didn’t matter where you were from or where you were going; he appreciated each interaction and nurtured relationships with those around him. He also showed his appreciation and compassion for others by reaching out to the local community. He participated in Notre Dame’s community outreach programs and even took the time to visit many of the organizations on his own. Taylor made many less fortunate kids’ days by giving them a hug, some words of encouragement, or a T-shirt signed by the team.
Taylor graduated in 2011 with his proudest accomplishment and the reason he chose Notre Dame: a bachelor’s degree in Marketing from the Mendoza College of Business. Upon completion of a fifth year of football in the following fall, he considered his prospects for the NFL.
After a brief stint with the Dallas Cowboys, Taylor retired from football. He then embarked on a career in sales and marketing in the tech industry. With a Notre Dame business degree under his belt and enthusiasm to embark on a new chapter in life, Taylor took advantage of the opportunities in the Bay Area and relocated to San Francisco in 2012.
Following his move, Taylor began showing signs that something was different. We started noticing gradual changes in his personality, behaviors, and his decision-making. At first, the symptoms were hard to gauge. He was living in another city and his considerate and positive spirit never wanted to bring anyone down. But by early 2017, it became clear Taylor was not himself. Over the next few months, there was a significant change in his lifestyle and his relationships. He moved back home to Nevada City that summer.
By then, Taylor’s depression, anxiety, paranoia, and short-term memory loss were prevalent. He was unable to keep a job, manage normal tasks, and maintain relationships. He turned to substances to help ease his pain, adding another layer of complexity to what he was going through. Our family tapped every resource we could to help get Taylor a diagnosis to explain the clear changes taking place. After numerous visits with various physicians and mental health professionals, scans, and MRIs, we struggled to find answers.
Not having any documented concussions during his playing time, it was difficult to make sense of the changes taking place. Over time, Taylor became suspicious his football career was a factor. He believed he was suffering from the symptoms of CTE and stated he wanted to donate his brain if the day ever came since right now, CTE can only be diagnosed post-mortem. Taylor intended to contribute to CTE research to help others in the future.
Taylor passed away in December 2020 at the age of 31 due to an accidental drug interaction. His death was the end of a years-long struggle with what we now know as stage 2 (of 4) Chronic Traumatic Encephalopathy (CTE), caused by brain trauma from repetitive hits to the head. With the clinical diagnosis from researchers at the UNITE Brain Bank, we finally found some relief. The diagnosis explained so much of his behavior, but also raised more questions of why he developed the disease and how it turned his life upside down.
Taylor wanted to change the world. He was destined to make an impact. We are carrying on his mission with the formation of Taylor’s Tree, a nonprofit foundation aiming to provide awareness and support for mental health and suspected CTE.
Our first project with Taylor’s Tree is to support the Concussion Legacy Foundation in their efforts to raise awareness and End CTE through prevention and research. We ask you to please consider giving to CLF in Taylor’s memory.
We love and miss Taylor every day!
Danny DiFrancesco
Danny was the second of five children. By nature, he was quiet and shy. Sports helped draw him out, and he grew to have many friends. He loved animals, nature, and adventure. His sensitivity showed very early; I remember he was sitting in front of the TV intently watching Sleeping Beauty with the family milling around him on a New Year’s Eve. He was less than three years old. As I started to move him a little farther away from the screen, I noticed his eyes were welled up with tears – just as the prince was waking the beauty. He never lost that sensitivity and became the most compassionate human being.
Danny’s first years of school were rough. He had debilitating separation anxiety that caused a sense he was different from others – a feeling he was acutely aware of throughout his short life. When Danny was around nine years old, he suffered his first concussion playing baseball. The protocol then was fairly simplistic: watch for headaches or uneven pupil dilation, and make sure he could be awakened from sleeping. At the age of fourteen Danny was hit by and pinned under a truck while riding his bike. This was his second documented concussion, which also left him with a fractured lumbar spine.
Within two years of the bike accident, we were noticing impulsiveness, outbursts, indecisiveness, and frustration. After punching a window and severing his artery, Danny’s behavior and judgment were being called into question. ADD and PTSD from childhood trauma were the first of many diagnoses. He initially rejected counseling, medication, and labels, furthering his confusion while compounding his anger and reactiveness. His passion for sports, in particular hockey, was his primary outlet. His ethics in sport and hard work never wavered, even though his personal life began to unravel. Our separation and divorce sealed the deal, and soon he found himself in legal trouble and suspended from school. He played harder in hockey than ever and sustained more head injuries. By the time he was 27, Danny felt he had to get as far away from our town and its memories as possible. The next few years seemed to be the best for him. He found and loved South Lake Tahoe. Within a year he worked his way into a supervisory position as security in a casino; he would say he was good at this job because he knew how to relate to the ‘troublemakers’ and effectively deescalate any bad situations. He made fast and close friends with others who loved to snowboard, hike, and fish with him. There were hints of troubles – heartbreaking relationships or annoying roommates, but it all took a turn when Danny’s best friend had to carry him off a ski slope after he tore everything there was to tear in his knee. He had to come home, and his athletic days were all but over.
The last ten years of Danny’s life were a cascade of insensitive or incompetent doctors, never knowing exactly which fire needed to be addressed first. His body and mind were simultaneously torturing him. He saw over two dozen specialists for almost every system in his body. He was hospitalized almost as many times with infections, injuries, disorders, and by then, reactions to dozens of ineffective medications or treatments. The ever-changing diagnoses from mental health providers were overwhelming. He was screaming in his sleep from night terrors. He couldn’t sleep, changed jobs frequently to accommodate his hurting body, and faced evictions due to either financial stress, “noise offenses” when sleeping, or both. Meaningful relationships were tested, leaving some broken. In the last few years, the only people he saw daily were myself, his lifelong friend and brother-in-law, T, or a health provider of some sort. I personally do not know what I would have done without T, Uncle J, or Danny’s friend, J. I don’t know, either, how much more painful it would have been if he hadn’t had their faith in him. And everyone who knew Danny would agree that without his niece, nephews, and little twin cousins to look forward to seeing, his life may have been void of any joy at all. He was keenly aware that family, friends, and the public at large saw him primarily as having troubles due to drinking. With complex PTSD and ever-worsening diagnoses plaguing his life, and the added shame of judgment and criticism, burns and cuts on his arm from self-mutilations were common signs of his internal and external pain. His desperate words, “There’s something wrong with my head,” and “Please, ma, please let me go,” or “Why am I like this” still echo in my head and absolutely break my heart.
Danny never stopped trying to find help, but he had lost hope. He became suicidal and made multiple attempts, even jumping out of my moving car. He was often triggered by the sight of a cop car, a knock on his door, or even thinking about another invasive or intrusive doctor appointment. A year or so before his death we had both watched a documentary about CTE, and Danny brought the subject up with his psychiatrist via Zoom. I happened to be on the call as well when this extraordinary man responded very compassionately and firmly. Dr. G had been reviewing the past two years of notes (he was relatively new) and asked Danny if his neurologist had done any brain scans or studies. The neurologist had ordered an MRI years earlier at my request, but said the results were unremarkable. The psychiatrist then asked Danny why it appeared that his primary was not treating his hypothyroidism. Or his anemia. Or his high cholesterol and blood pressure. Only one other specialist – his orthopedic surgeon – had ever approached Danny with simple human compassion and concern. The psychiatrist’s next comment was directed to me: Find him new, reputable doctors immediately, and get his brain looked at again. We did manage to get his brain looked at, but only after he had died suddenly. After 10 months we still have no answers from the medical examiner, or even an investigation into his death by local police. He had said many times that he just wanted to donate his organs to help kids. My daughter (almost by divine intervention) remembered to relay Danny’s wishes to the coroner. It was too late to harvest any organs, so she immediately pulled up the website for the Boston University CTE Center. This he could do. This is how we came to learn he had stage 2 CTE; bittersweet to finally have a diagnosis that explained so much and felt like vindication for him, but also unleashed a tidal wave of guilt and regret on family and friends who loved him so much.
There is an indescribable tragic cycle that starts with a head injury. The cycle of alcohol, or abuse, or judgment, or shattered families and relationships. The cycle of being misinformed and misunderstood. This is a horrifying and tremendously sad story. But Danny’s life absolutely had purpose. His life left us with endless and indelible joyful memories. He was a skillful and determined Easter egg hunter and there was no theme, costume, or competition he was too proud to embrace. He was known to scan the fridge and cupboards for so long thinking about what to eat, that inevitably he would walk away empty-handed mumbling, “I’m full.” He was a master at moving furniture – the bigger the couch and steeper the stairwell, the better. He always loved a good puzzle.
Our Danny was more than a good person. He was the one who never hesitated to help others or recognize someone else’s distress. He befriended and shared his food with local homeless people. Being judgmental of others was not in his nature; he was charming and could genuinely connect with anyone. He helped anyone stuck in the snow. He helped before you even knew you needed help. Despite his chronic pain he was the first one on the floor to pet an animal or play with a child. Despite his emotional pain he would take great joy from sitting at the kids’ table. He was colorful and quick with a laugh; smart, hilarious, clever, observant, and kind. He has opened so many hearts and minds to new insights on love, patience, and acceptance. His brain donation has helped educate and inform our family and community. I’m so sorry we can’t tell him how devastating his death will forever be. How painfully aware we are that we let him down. How enormous the hole is in our hearts he left behind. How much we love you, Danny.
You never seemed to understand why I was, and still am so proud of you. You are a warrior, and I celebrate your life and Legacy, and especially your strength and spirit. I will always love you. ~Ma
Salvatore DiMucci
I never thought I’d be sitting at home reliving my late husband’s life through a box of newspaper clippings with two babies to look after. But there I was, less than a year after Sal’s death, thumbing through the mementos he kept boxed up. I used to think of the boxes as kind of a nuisance, taking up space. I didn’t understand why he’d kept so many. But then I came across his football boxes. There was a box of letters from college recruiters, a box of team photos and clippings of old articles from his college and high school playing days that showed him in the limelight as a star running back. It looked like an amazing time in his life filled with close friends, football scouts, and college scholarships. Those were his glory days.
I also never thought I’d hear a police officer pounding on my door. “Your husband has been in an accident, I need to take you to the hospital,” he told me. I sat alone in the hospital room for hours waiting for family and friends to join me, numb to what was happening and waiting to hear about my husband’s condition or if he was even alive. Part of me knew that he wasn’t. In the eight years that I’d known Sal he was never the type to drink and drive, but the toxicology report later confirmed that Sal was over the legal limit. Sal was driving home from dinner when he struck a tree and was thrown from the car; his two acquaintances walked away with minor injuries. I couldn’t make sense of the accident, or his risky behavior. I still can’t. Not completely.
Sal was strong and intelligent. He played two years of football at Wisconsin before retiring because he blew out both knees. For him to continue playing, his life would have revolved around cortisone injections and pain killers. He just didn’t want to start down that path to play football. Sal didn’t want his football career to destroy his body, so he walked away. He knew enough about his joints to decide football wasn’t worth destroying them, but he had no idea what football could do to his brain.
I met Sal in 2008, when he was 27. I was in medical school and he was contemplating sitting for the LSAT and applying for law school. As our relationship continued, he started to tell me that he felt like something was wrong with his brain. He would also say he felt like he was going to die young. I heard him, but I didn’t really listen until much later. I just thought he felt that way because he’d lost his own father to a heart attack when he was only sixteen. And neither of us knew enough about brain injuries, let alone chronic traumatic encephalopathy (CTE), to understand what might be going on with him.
We dated off and on until we finished professional school, and he was still functioning at a high level. High enough to finish law school and to work in an important role at his family business. When we married in 2013 and had a baby on the way, Sal became more serious than ever about his suspicion that he had brain damage. Sal told me something was wrong with his memory and concentration, and I could see that he was struggling with his moods and behavior. He read everything that he could get his hands on about brain trauma associated with football, but he had come to rely on ADHD medication to concentrate. He hated that he had to take Adderall to accomplish simple tasks, but by that point he needed it get anything done.
Sal’s symptoms gradually got worse. His moods swung high and low, almost like bi-polar disorder. He struggled more with substance abuse issues as time went on. I couldn’t understand the changes, or why one minute he would be normal and then the next he’d be depressed and getting wasted, seemingly without reason. “I think better,” I remember hearing him explain. In the moment, while I was trying to raise a baby, manage a household, and deal with this man who would be fine sometimes and then completely off at other times, I was not able to process all the changes. But in hindsight, his words make more sense. Sal knew his brain was damaged, and he was trying to cope.
One night in April of 2015, Sal and I had been working on our estate planning and he’d taken Adderall to finalize our plan. He continued working after I went to sleep, and I vividly remember Sal bursting into the room at two or three in the morning. “Lisa! – Leese – I want my brain donated to the Boston University CTE Center for research.” He practically yelled it. I wasn’t thrilled to be woken up that early in the morning, and he was disappointed by my response. He wanted and needed me to know. I didn’t fully understand why it meant so much to him.
Six months later, Sal and I went to see the film Concussion. That’s when things got real. Before that point I was starting to truly believe that something was wrong, but the movie drove it home. Sal was sobbing as we got into the car afterward and I felt like I got punched in the stomach. My mind raced. I’d seen the mothers and wives in the movie. What was my future going to look like with this man? If this is already what it’s like today, what is it going to look like ten or twenty years from now? What are our children going to see? Is it going to be like the scene in the movie where Justin Strzelczyk is screaming and raging at his family and terrifying his children? Is he going to be sitting there emotionally detached from life? Could this become my life?
Six months after that, I was picking out Sal’s casket in a funeral home. I was five months pregnant with an almost 2-year-old at home. I was numb, and struggling to process everything that was happening as I went through the motions. “Yes, those flowers are fine – yes, 3:00 PM for the wake – yes…wait…No. No. Where is Sal’s body? Hold on. No, I can’t pick out a casket. What’s happening? He wants his brain donated, I’m not doing anything until I know that his brain is going to be donated.” I wasn’t going to plan a funeral until I knew that his brain was going where it needed to go. So, I called my attorney, and the funeral director called Boston University.
I was just as devastated getting the results of Sal’s stage one CTE diagnosis as I was when I heard about his death. I thought about what else I could have done. Could I have treated him differently? Could I have helped him manage his symptoms? Sometimes those thoughts return. Now, I think more about what I can do to help people recognize this disease in their loved ones so that they can find ways to treat the symptoms while they’re still alive. And I feel like I need to do something to help people understand that what happened to Sal’s brain could happen to their child’s brain.
I remember one specific moment when I was at the gym. I was sitting on the ground stretching and I heard two women behind me talking about their 10-year-olds’ summer football camp. I didn’t know who they were, but I almost lost it. I almost went up to them and shouted, “Why are your kids playing football? Don’t you know what can happen to them? Don’t you understand?” I fought the urge, deciding it wouldn’t have done any good. But in that moment I knew I had to do something more. I had to share our story with more people so that they could understand what’s at stake.
In the years before Sal’s death, he became passionate about protecting kids from head injury. He was adamant that football was the reason why he had mood swings and trouble concentrating, and he had no intention of letting our sons play. He researched and thought about investing in a company that was designing “soft” helmets to minimize impact. Sal said over and over that he used his head as a weapon, and that there was no getting around hits to the head. He’d recently found a passion for tennis, too. “If I had found a game like this sooner I wouldn’t be so messed up,” he would say, meaning he wished that he’d played tennis, paddle tennis, or some high-adrenaline sport as a kid instead of football. He fell in love with the idea of promoting non-contact sports. More than anything, Sal felt that there needs to be an option for the aggressive kid who wants to get out there and get his adrenaline pumping that doesn’t result in brain damage.
The most difficult moment of going through that football memory box was finding a photo of Sal in his football pads at eight years old. He was so young, and our sons Salvatore IV and Rocco look so much like he did. I get angry when I look at it. I’m angry at the absurdity of Sal developing a brain disease because of a glorified form of entertainment. I’m angry that there is a continuing cycle of football players who decide to enroll their young children in this sport because they don’t know any better. Sometimes I feel helpless to change it because this game is so embedded in our culture and lives.
When I drive by a football game, I see the lights, and I know that someone’s child is reliving the same glory days that my husband lived through. Then I can’t help but picture Sal a few years before he died, too depressed to get off the couch. Or having a fit because he can’t concentrate for long enough to complete a simple task. Or hyper-focused and almost crazed because he took an Adderall to knock a few things off his to-do list. I drive by and wonder, if those parents saw what football did to Sal, would they still cheer for their child to dig deep and finish the game out strong?
So many people want their child to become a star athlete, and I don’t blame them. But it’s obvious that something is wrong when that star could become a 30 or 40-year-old who is unable to function in society properly because of brain damage. Sports are meant to prepare children for their future, not endanger it. If this game is going to continue, something will have to change.