Evan Granville

Evan Granville of Hamburg, NY, entered into rest on March 31, 2022 after a courageous battle to live. Evan was known for his easy-going personality, forever smile, great sense of humor and most of all, his love of family. He lived life to the fullest and was a very accomplished athlete in many sports.

Evan, throughout his life, had an insatiable appetite for history. His favorite period of time was the Civil War, especially the Battle of Gettysburg. Evan could share his education, life experiences, and research of Gettysburg, in detail. Turning the facts into a mystical journey.

He was in his glory when debating his professors and enlightening many around him. But most of all, just sitting around the campfire, chewing the fat with soldiers during his numerous attendances at the battle reenactments.

Evan travelled with his parents and siblings during his childhood and adolescent years to every Civil War battlefield. To illustrate his passion for those 3 days in July, 1863, he pleaded with his dad at the ripe age of 12 to get a tour guide. Finally, after his father relented, he asked, “Evan, why a tour guide?” Evan responded, “I want to see how many mistakes he would make!” In his 20’s and 30’s, Evan and his posse heard many of his debates and challenges and enjoyed many free libations at various establishments.

In 2012, Evan was to meet his “life partner,” Jenny White. In the following 10 years, they enjoyed many precious moments together. Traveling to places like Key West, Sandals, Naples and many more. Some of their excursions were even just trips to Ellicottville and the “Ridge.”

On September 3rd, 2019, their miracle happened. They would be blessed with a beautiful baby girl, Kennedy Fiona Granville. This commissioned a whole new journey as the three of them were inseparable. Evan enjoyed one of the simplest things in life such as their daily strolls to Haak’s Cakes.

After many memorable moments and hundreds of pictures. Evan got his birthday wish on July 2, 2021, to travel once again to Gettysburg. Here he shared his many points of interest of Gettysburg with the 2 ladies in his life.

The picture up above is Jenny and Evan’s favorite. Dad holding his “Pumpkin” at his favorite place, “Little Round Top”!!

Evan is survived by his soulmate Jenny White, dear mother of his precious Kennedy Granville. Son of Patrick and Priscilla (Weathers) Granville. Brother of Ryan (Melisa) Granville and Amy (Derek) Grove. Loving uncle to Kelly, Zach, Brennan and Grace. Grandson of the late Lawrence and Marjorie (Miller) Weathers and the late John and Agnes (Bohen) Granville. Also survived by many aunts, uncles, cousins and friends.

 

Eric Grigsby

Eric Clifford Grigsby, age 49 of Lenoir City, TN, passed away on Sunday, May 23, 2021, at the Loudon County Hospital in Lenoir City, TN. He was born August 9, 1971 in Harriman, TN. He was a loving, caring, Christian husband and son. He tried to help everyone he came into contact with.

Eric played offensive guard throughout his football career at Harriman High School and continued through his college career at Carson Newman College and then at Tennessee Technological University. While attending college he started his own business for 19 years known as “Grigsby Militaria.” After graduating college and continuing his business he started to realize something wasn’t right with his health. He needed help but didn’t know what kind of help. As time went on the last two years of his life, a doctor told him he had symptoms of what is known as CTE and he also had PTSD. Eric was put on medications that helped but didn’t cure the problems. After his death he became one of the Legacy Donors at the UNITE Brain Bank. He wanted to still be able to continue to help people.

John Hacker

We fell in love with John at first sight on March 25, 1980, and that will always be. We thought we had the perfect family and the perfect life.

We lost our beautiful, gifted son tragically 39 years later leaving us to somehow piece together an inexplicable puzzle. We never dreamed CTE would be our story, but we are grateful to the UNITE Brain Bank team for their knowledge and compassion as we travel this path. They have given us some answers to our questions we believed had no answers.

Our son John was a joy from the beginning. He wore a mischievous grin and twinkle in his eye that earned him lots of love and many friends.

From a very early age, he excelled in music and sports. He played violin and piano for us and he passionately played anything with a ball and friends for himself. That passion and intensity never changed with the many teams for which he played.

John played sports year-round, both at school and with travel teams. He always played at full speed whether it was practice or for a championship. We filled our summers with many trips, awards, and friendships. He also loved to run, and he was fast, holding the record in Missouri in the 50 and 100-yard Hershey Meet. The performance won him a chaperoned spot to compete nationally where he placed third two years in a row.

John loved varsity sports and was named captain of his baseball, basketball, and football teams his senior year in high school. He was recruited for college programs in each sport. He was plagued by injuries throughout his athletic career breaking both feet his senior year and, of course, numerous head injuries. Because of his history of injuries, he decided to play D1 baseball at Missouri State rather than the riskier offer of football at MU. We applauded that decision and felt a sense of relief as we hoped for a more injury free future.

John also did well academically. He had been placed in gifted education in elementary which he did not particularly enjoy. He was glad to rejoin his friends as soon as we allowed him to drop out of the program in middle school. He made high honor roll every quarter throughout his academic career and was named All-State Academic and Scholar Athletic Award in high school. He also loved to sing and was in honor choir and earned state vocal music honors. He was named Bolivar High School Outstanding Bass. His life looked so bright.

John dropped out of MSU baseball his sophomore year for a variety of reasons including another injury. He also had a tentative plan to attend law school and knew he needed to buckle down. He was accepted as a student at the Creighton University School of Law and graduated from there 3 years later. He enjoyed both his undergrad and law school experience, again making many friends that valued him for his kindness and sense of humor. He continued to maintain these friendships until his death. John never left a friend behind and they came by the hundreds to his memorial service; friends from his youth sports, high school athletics, college players and many of his fellow attorneys. He was beloved by everyone.

I’m not sure when we began to notice John changing. I do remember he came home from law school unexpectedly, citing depression. We did not take it as seriously as we should have. We cheered him up and sent him back. It was just so hard to believe that a guy that seemingly had everything was depressed. Our hindsight is clear. It was the beginning of traces that we would much later attribute to CTE.

John graduated from Creighton Law School and passed the bar exam on the first try and was hired by a well-known firm that he had interned with in college. Eventually, he started his own practice and married a lovely girl. Together they had two children that were the center of their lives. His family meant the world to him and they were loved and adored. Most days looked good from our perspective, but we now know John was very adept at hiding symptoms. He was not one to draw attention to himself and he did not want us to worry. We did begin to see signs of a struggle as his health declined. We sought a variety of medical help with no definitive answers.

John was well known and respected in the legal field and was honored to receive the Equal Access to Justice Award. It was evidence he believed all people deserve legal representation, and he took many cases with little or no fee. While representing such a case two years prior to his death, John suffered a seizure while in court and was hospitalized for several days. The seizure was the turning point in all of our lives. We began to seek answers in earnest. John suspected he could be experiencing symptoms of CTE. When he told us, we wanted it to be anything else, knowing the prognosis. CTE can only be diagnosed postmortem so at this point we didn’t have answers, but the possibility was frightening.

The following years were filled with both good and bad times. The bad days became more frequent as time took its toll. John somehow managed to continue with his law practice, coach Jack and Annie’s teams, and hang out with friends although we were all very worried. He was hospitalized several times, again never with any real answers or help.

The second week in November 2019 John disappeared after a visit to our lake home. He had not been well and came to our house for a few days of peace and quiet. He was depressed, somewhat confused, and had a severe headache. As the week passed, he felt better and planned on coaching Jack’s game on Saturday morning. When we woke up that morning, John was gone. He was reported missing and after an exhaustive 4-day search, he was found in shallow water, lakeside. We do not know exactly what happened that night. We did not see any cause for alarm. We will always think it was another seizure. Maybe not.

After John’s death, we sought the help of the Concussion Legacy Foundation because of John’s sports related concussions and his own opinion that something was terribly wrong in his head. We needed definitive answers and had nowhere to turn so we decided to donate his brain to the UNITE Brain Bank where researchers diagnosed Stage I CTE. With the encouragement and support of CLF, we have spoken out on our local tv channel as well as our newspaper in an effort to arm other parents with the information of the danger of playing contact sports at an early age. We believe this is what John would have wanted. If only we had this information sooner, we would have made very different decisions.

We will forever miss and love our beautiful son who we believe suffered and died because of early participation and injuries suffered in contact sports. His life was a blessing. His death destroyed us.

John was diagnosed with CTE even though he stopped playing contact sports after high school. In hindsight, John suffered a lot of head trauma while he was in high school and before that could have been avoided. The very first play of junior high football in seventh grade he was knocked unconscious on the field.

Knowing what we do now, we wouldn’t have taken the risk. We want other parents to understand that letting children play contacts sports is exactly that, a risk.


The Flag Football Under 14 campaign is the Concussion Legacy Foundation’s awareness and education program designed to help parents make informed decisions about youth tackle football. The Concussion Legacy Foundation strongly recommends that parents wait until age 14 to enrolling children in tackle football. Learn why

Justin Hall

With memories of dad in tow, Jesuit football player bids touching farewell to the sport

Jesuit High Schools Jacob Hall has had numerous injuries that have sidelined him at the end of his high school football career. His father, Jesuit teacher and coach Justin Hall, suffered from chronic traumatic encephalopathy, or CTE, caused by concussions during his football career which including college at Notre Dame. The neurodegenerative disease culminated in his suicide four years ago. Moments before their game against Vista del Lago on Saturday, April 17, 2021, Jake shows a table that honors his father on campus at Jesuit High School in Carmichael. Xavier Mascareñas [email protected]

 

Jake Hall stops by the table most every day, to reflect, to wonder what was and what might have been.

The Jesuit High School senior will also look to the heavens and speak in spirit to the driving force in his life. It’s the silence of no response that pains Hall the most. The nameplate fixed to the campus structure is a memorial marker for his father Justin Hall, a beloved teacher and football coach at the school for nearly 20 years. He died in 2017.

Hall is closing in fast on graduation and the start of the rest of his life. It will be a journey that will no longer include the highs and rigors of his favorite sport. That adjustment is difficult to accept. Hall was deemed as Jesuit’s best player by Marauders coach Marlon Blanton, and one of the school’s top scholars with a 4.3 grade-point average. He is also perhaps Jesuit’s most courageously strong individual.

“What an incredible person Jake Hall is, just wow,” said Jesuit’s longtime football public address announcer, Tim Fleming.

“This season,” Hall said in soft tones, “has been the hardest, the most painful, but also in some ways the most rewarding. I know I’ll never play football again, but I know I have teammates and coaches who care.”

The spring football campaign started with the 6-foot, 170-pound Hall bounding into the mix with visions of touchdown receptions, crushing tackles on defense and playing small-college ball in Southern California. The season was marked by searing agony, of surgically repaired shoulders getting torn apart in a game against chief rival Christian Brothers. His screams on that cool March 26 night in Oak Park reverberated in a Christian Brothers stadium half full due to the pandemic.

On April 17, Hall was back in uniform, incredibly, but he was a shell of his playing self. He caught the ball on the first play from scrimmage against Vista del Lago on the Marauders’ home turf and hustled out of bounds. He had to get out of harm’s way, his shoulders too battered to do much more. The play was by design. Coaches from both sides agreed to this move of sportsmanship and closure. Some two hours later, the contest ended with Hall taking a knee for the Marauders in victory formation to cap a 56-42 triumph. He was embraced by coaches and teammates, and later family, a memorable Senior Day if there ever was one.

Hall said this all comforted him, a good thing, because he cannot escape the hurt. His heart hurts. His surgically repaired shoulders hurt. His pride hurts. He visited that memorial table an hour before his football grand finale, wearing his familiar bright red No. 29 jersey, relieved that his body has waved the white flag, but saddened also that he cannot continue his father’s college legacy.

“I’m honored, touched, and proud that my dad had that sort of impact on people, and that people miss him, because I sure know that I do,” Hall said, sitting at that table. “I think about him every day, at every game, on every play. He’s the reason I love this game. He continues to give me strength. Dad went through his own injuries and pain, and it was something years later that he really struggled with. That’s the saddest part. We couldn’t help him or save him.”

Losing a coach/father/mentor

Coach Hall died by suicide on Nov. 27, 2017, shortly after coaching his oldest son in junior varsity football. Jake Hall believes his ailing father held on long enough to be able to coach him before he lost his will to live.

Coach Hall helped anchor two state championship teams in high school in football-mad Texas and grew into a mountain of a man at 6-foot-5 and nearly 300 pounds. He met Jen at Notre Dame and they married after relocating to Sacramento. She worked in the football office, handwriting letters to recruits.

Coach Hall told Jen before his death that he was worried about his own behavior, his irrational thinking. Their final six months together were not easy. He was emotional when he told her, “I don’t know what’s wrong with me.” He feared he was slowed by countless football practice and game collisions — concussions — as a Notre Dame lineman, a run that included the 1988 national championship under coach Lou Holtz.

Coach Hall told Jen he wanted to have his brain studied after he died at Boston University for Chronic Traumatic Encephalopathy, a degenerative brain disease found in athletes with repeated blows to the head. Coach Hall lived long enough to see his son earn team MVP honors on the junior varsity. He was found days later in the family garage, before Hall and his two younger siblings, Caleb and Abby, got home from school.

As traumatic as it was, Jen said it would have been a great deal worse had the kids found him first.

“We learned that Justin had Stage 3 CTE, really bad, and the fact that Justin was even functioning at all was amazing,” Jen Hall said. “I was in Seattle for a work trip when I got a call from Jesuit that Justin hadn’t come to school for work. I knew something was terribly wrong. At that moment, you know life is changing for our family, and you shift into survival mode: get to the kids, take care of them, hug them, love them — and do the best to explain it to them.”

She paused and added, “Jake as the oldest has been amazing. He’s handled it so well, as have his siblings. Proud of all of them. Jake has been outspoken about mental health, and we wonder and wish his dad had done things differently. But his brain was damaged. It’s frustrating and it hurts because we want things to be fixed.”

Jen Hall speaks openly about CTE. She doesn’t avoid the topic with family or friends because she understands the CTE toll families.

“We don’t know how to fix CTE without not playing sports at all, but we know what leads to it — blows to the head,” she said. “CTE hurts more than just the player. It hurts everyone who knows and loves that player.”

Letting him play

Jen was worried about Jake playing football. Concussions happen in this sport, certainly, and her son never played cautiously or in slow motion. He was a full-bore. player His father coached him to compete like that.

Imagine, then, Jen’s anguish when she watched her son writhe in pain against Christian Brothers. He landed awkwardly on his left shoulder, and the force tore through seven titanium anchors that held the shoulder together from previous injuries. As Jen stood stunned in the stands, hands on her face and her eyes welling with tears, she was most moved by teammates and coaches rushing to console and comfort her boy. She also didn’t want to be the sort of mom to scale the fence to rush to his aid.

“It was the most painful moment of my life, because it made me think of my dad, that loss, not having him when I needed him, and then knowing I was badly hurt,” Jake Hall said. “I was screaming because I knew football was over for me, that it was finally over. It all hit me at once. My shoulder had already been dislocated 15 times in high school. Just too much. It just can’t handle it any more of this game. My body was telling me to give it up, and that’s hard because you want to play forever.”

Hall caught his breath and added, “I was lying there on that field, my mind a blur. I’m thinking of what my dad might say to me, and then coach Blanton grabs my head, looks me in the eye and tells me, ‘It’s OK!’ That was a special moment. He was right. It was going to be OK. I needed to hear that. All things considered, I was OK.”

Jen views football differently now.

“I used to watch football for fun,” she said. “Now I watch to make sure everyone is standing up after plays. That’s the evolution of a football mom. When Jake went down against Christian Brothers, it became surreal. Oh, he’s not hurt. Then you realize it’s your son, and you hear him in horrible agony, and you know he’s there playing for his dad. It wasn’t just a game. His career was ending. It was surreal and sad.”

The return

With the blessing of his family doctor and his mother and coaches, Hall talked his way back into playing one final set of downs, to exit the sport on his terms. No tackling, no blocking allowed.

Jen watched from the bleachers, as she always has. This time, the tears were for the end of a playing era. She said she was at peace knowing her son was able to walk away from the sport before it dictated the terms. Blanton was emotional in talking about it.

“Jake’s a Marauder through and through,” he said. “He means a lot to the school of Jesuit. He’s more than a football player. We wanted to honor him any way that we could in this final game.”

Jen Hall said in her home, her three kids talk openly about their father. They don’t hide any sense of shame. Brain trauma happens, and suicides happen, sadly.

“I never wanted to pretend that their dad didn’t exist,” Jen said. “Sometimes, suicide is so painful to talk about, to deal with it. We let it out. We talk about it in our house.”

She added, “There was a lot of good about Justin. I was always so proud of him as a coach, for making such a difference for so many kids.”

After a moment, she added on any perception that her husband was selfish in taking his own life, “When someone has that sort of brain damage, they’re not in their right mind and their brain is simply not functioning properly. For anyone to judge a man like Justin for what he went through and did is highly inappropriate. I’m no mom of the year winner, but I do my best, and they’re thriving, happy kids. And we’ve learned a lot, that life really is a journey and it’s how you handle things.”

Making dad proud

Jen said she was touched members of Notre Dame’s 1988 title team attended Justin’s funeral services in 2017. Players hugged her and comforted her and the kids. Younger son Caleb is a 15-year-old freshman who wore his father’s old No. 73 this spring season. He is a large kid at 6-foot-4, following in his father’s size. Jen will not prevent Caleb from playing in the trenches, never mind the dangers. Older brother Hall is writing a research paper for school on CTE. He said the rewards of football still outweigh the pain of the sport.

“You have brothers and memories to last a lifetime,” Hall said. “Football is about life, and I’ve had a good one.”

He added, “We know that football is much safer than it’s ever been with concussions. My brother knows this. I tell him to be aggressive in football but to be smart and safe. It’s OK to leave the game if you feel like you’ve taken a shot to the head, or to avoid someone going for your head. That doesn’t make you a coward. It makes you safe and smart. I’m proud of him. Dad would be proud of him.”

Hall said the table bearing his father’s name was a surprise donation from his best friend, Ronan Brothers, through an Eagle Scout project. Hall recalled a moving conversation with his father, weeks before his death.

“He sat me down and told me that if anything were to ever happen to him, that I needed to take care of mom and the younger siblings, to be there for them, to be strong for them and for me,” Hall said. “I thought maybe he was talking about if he were in a car accident or something. I didn’t understand the depth and meaning of what he was saying, but I do now. I’m grateful for the time we had with dad, our special bond, and I will always be inspired to do the best, to be the best I can be, and I will. I’ll make him proud.”

 

Ken Haller

I’ll begin by saying that on October 13, 2008, I lost the first man I ever loved, my dad, William Haller. Less than three months prior on June 25, I also lost another man I loved with all my heart, my brother, Ken Haller. Needless to say, I wish I could go back in time, knowing all that I know now. My dad and brother were both diagnosed with ALS, but unlike my father and most ALS patients, my brother’s mind deteriorated quickly, as if he had some sort of dementia. We later discovered that Kenny also had chronic traumatic encephalopathy (CTE).

Let me start from the beginning…

Kenny was the third born in our family, after my two sisters and two years before me, and since he was my dad’s first and only son, their bond was very strong. One could never live here on earth without the other. I tell myself that is the reason why their lives ended within three months of each other. As a toddler, Kenny had so much energy and had no fear, so as soon as he was old enough, my dad signed him up to play football. I’m sure my mom was delighted, since he needed an outlet for all of the energy he had. He played football from eight years old through his college years as a tight end. By the time he was a senior in high school, Kenny was 6’4”, built, extremely attractive, and the life of the party. He always had a sparkle in his eyes and loved life. Kenny had friends of all kinds, but his best friend was my dad. They spent as much time together as possible and truly enjoyed each other’s company.

I can’t tell you how many concussions my brother must have had throughout his football years. At that time a player was expected to get right back in the game after they had their “bell rung.” It was always about the win and, in my brother’s senior year of high school, the team won the conference and we were all so proud. After college, Kenny had a career, got married and had two beautiful daughters. As time went on, his personality changed and when we look back now as a family, there were signs that something wasn’t quite right beginning in the year 2000, eight years before he died. He would act impulsively, make inappropriate remarks and poor choices. As time went by, these actions happened more often than not. Eventually, Kenny could not keep a job, his marriage deteriorated then fell apart, and he had to move into an apartment on his own. We thought this was best, since the only thing he focused on and wanted to do was see his daughters, and we all lived an hour away. It was about this time that my dad starting slurring his speech and exhibiting signs of what we later found out was ALS, most likely triggered by the stress of what was happening to Kenny, although we still didn’t know what was wrong with him.

A family member said that he was sure Kenny was doing drugs and at first I thought—well, maybe—but then I had that gut feeling again and it told me that it wasn’t drugs. My sister, Diane, took him to get drug tested and the results were negative. Diane was about a year and a half older than Kenny, and I have to say, she was his guardian angel. Since she was home raising four kids and did not work outside of her home, she had time while the kids were at school to take him to his doctor appointments, manage his prescriptions, do his grocery shopping, clean his apartment, etc. She was Kenny’s advocate and I really don’t know what our family would’ve ever done without her. Of course, my parents would also go with her as much as possible to help, because Kenny could be a handful. As time went on, my dad’s ALS got worse and Diane not only took care of every aspect of Kenny’s life, she also went to every one of my dad’s doctor appointments to take notes and advocate for him as well.

Over the next couple of months, the doctors tried to figure out what was wrong with Kenny. Was it Pick’s Disease, or some other kind of dementia? Nobody really knew, but after Kenny’s muscles in his arms started twitching uncontrollably, the doctor diagnosed him with ALS. I read everything I could about ALS and it never made sense that his mind was affected. Unfortunately, his memory got so bad that 10 minutes after visiting his daughters at their house on any given day, he would forget and drive right back again. He would also show up at their school just to see them.

I’ll never forget the day my sister received a call from the police who said that Kenny showed up at the school and if he shows up again, he will be arrested. My sister and parents immediately brought him to the psychiatric part of the hospital’s emergency department and by the time I showed up after work, he was sitting in a padded room. Unfortunately, the staff was left no choice but to put him there since he went to the nurse’s station, collected his bag of clothes and shoes, and tried to leave the hospital without permission. It was so heartbreaking to see him in this padded room, he seemed so alone, just looking around with no understanding of where he was and why he was there. They allowed me to go into the room with him for a short time and all I could do was put my arm around him and lean on my big brother’s shoulder, trying not to cry. It made no sense to ask him what happened, since I already knew his answer. He just wanted to see his girls—that was always his answer.

Kenny with his daughters Morgan and Cassidy.

It was at that moment that my sister, parents, and I made the decision that he needed to live in a nursing home in that area, so his daughters could visit him frequently. He no longer could live on his own. Thankfully, Diane, along with my mom, found Kenny a good nursing home. Of course, after moving into it, he was so determined to see his daughters that he got out through the window. They found him walking about a mile away. When asked why he left, it was the same answer, “I just want to see my girls.” After that, the nursing home staff removed the crank handles of not only the windows in his room, but practically every window on the floor. Even with his mind deteriorating and his muscles going to waste, he still won over the hearts of the nurses. I’m not surprised. He had a way about him.

On my visits, I would bring my little blow-up tub and try to fit his size 14 foot in it so I could give him a pedicure while Diane cut his hair. By the way, he didn’t like to wear shoes, even when he went outside in the locked courtyard, so just imagine what his feet looked like. I think I had to change the water a few times, but it’s ok, anything for my big brother. It was during those times that I’d notice some of his old personality showing up when he would put his foot in my face and smirk, something he rarely did anymore. By this time, Kenny didn’t talk much, never smiled, only wanted to eat candy, nothing nutritious, and watch Sponge Bob on TV. One of the saddest moments was when I realized looking at his eyes that the light had gone out, there was no more sparkle. It was just a blank stare. He was just a shell. The Kenny that I knew all my life was gone and it was so hard to believe. On June 25, 2008, my brother passed away at 44 years old and on October 13, 2008, my dad passed away at 72 years old.

We were told that Kenny died from complications of having ALS, but I always had a gut feeling that it was something more. It was such a mystery. As a family, we decided to donate my dad’s and Kenny’s organs for ALS research. Approximately four years later, I was flipping through the channels one weekend morning and came across Chris Nowinski, the co-founder and CEO of the Concussion Legacy Foundation, on ESPN discussing a disease that I’ve never heard of before called CTE. I swear I was channeling my brother because I pretty much never watched ESPN, nor would I stop at that channel for any reason. As Chris was talking about CTE symptoms and causes, my mouth dropped to the floor and I just kept saying loudly, “That’s it! He’s describing Kenny.” Immediately, I called Diane and told her to put on ESPN and after watching, she agreed that he was describing my brother’s symptoms. Fortunately, I was able to contact Chris Nowinski, who put me in touch with Dr. Ann McKee, the director of the UNITE Brain Bank, and Lisa McHale, Director of Legacy Family Relations at the Concussion Legacy Foundation.

It took about two years, but we were finally able to convince the ALS research group who had my dad’s and brother’s organs to send Dr. McKee what she needed in order to conduct the research and hopefully find some answers. Two months later, we had the last of many conference calls with the Boston University research group and Dr. McKee confirmed that although Kenny did have ALS, it was secondary to Chronic Traumatic Encephalopathy (CTE). Mystery solved! Although my dad played basketball and did receive one concussion during his childhood, he did not have any signs of CTE and Dr. McKee confirmed that complications from ALS caused his death.

In researching everything I can regarding CTE, I’m convinced that, had my brother not played football, especially at a such young age, he may still be alive today to see his daughters grow into beautiful adults and one day walk them down the aisle when they get married, something that I know he longed for. So, then I ask myself, do I think Kenny would have played football had he known the risks? If he had known that his future would be would be giving up seeing his daughters, parents, sisters, and friends again? The answer to this question is “NO!” How do I know that? I know that because that’s how well I knew my brother. He was only two years older and since he and I were the youngest, we spent much time together and were a lot alike. There are so many more stories I could tell about Kenny and how he went from this proud, tall, muscular, all-star with a personality so pragmatic and fun to someone who didn’t care about hygiene or conversation and had no more light in his eyes, but I will save these stories for the book I’m going to write someday. Kenny’s story is certainly one that could be made into a movie.

As I said in the beginning of my story, I wish I could go back in time, knowing what I know now, because things would’ve made more sense. I will spend the rest of my life raising awareness about CTE and telling my brother’s story in hopes that it may save even one life and one family’s heartache. My advice to parents is to please reconsider if you’ve decided to enroll your child in collision sports like tackle football. Take it from me and my family, you never, ever want to watch your child’s mind deteriorate like we did. If you choose to ignore all of the evidence out there regarding CTE, please wait until they’re older and allow them to play collision sports only if it is their decision.

Not a day goes by that my family and I don’t think of my dad and Kenny, or that Mom doesn’t cry and we wish they were still here with us, but knowing they are together again on the other side gives us peace.

Our family is grateful for Dr. Ann McKee and the staff at the UNITE Brain Bank for all of their hard work and help in finding the true cause of my brother’s death.