Concussion Legacy Foundation response to the NFHS statement on Tackle Can Wait

The National Federation of High School Athletic Associations recently released a column critical of the Concussion Legacy Foundation’s Tackle Can Wait campaign titled, “No Linkage to CTE From Playing High School Football.” Tackle Can Wait encourages parents to wait to enroll their children in tackle football until high school, and is based on the shocking findings in the new VA and Boston University-led study Duration of American Football play and chronic traumatic encephalopathy published in Annals of Neurology.

In this study of the brains of 266 deceased football players, 223 of whom developed CTE, we learned that while the odds of developing CTE after one season of football are clearly low, the odds of developing CTE go up by 30% per year after that, doubling every 2.6 years.

What is remarkable about this study is the strength of the association. A test of how likely the association between football and increased odds of CTE is to be real, known as a p-value, is 0.0000000038, meaning there is about a four in one billion chance that more years of football doesn’t increase one’s risk of developing CTE. In fact, the correlation between years of football and CTE is stronger than similar studies of smoking and lung cancer, which is why we were comfortable developing a PSA that shows youth football players smoking cigarettes. Our point is that with this new data, we should look at both smoking and tackle football as inappropriate for children.

We believe the NFHS response to Tackle Can Wait illustrates the challenge of effectively communicating that tackle football is not worth the risk before high school but may be worth the risk during high school. In 2018, we explained why high school football is different in our Why Age 14 infographic. This new study provides evidence that we could prevent future CTE cases by shortening careers, and the logical way to shorten careers is to delay when children begin playing.

Tackle football is unique because if nobody played until high school, 94% of American football players would play four or fewer seasons in their lifetime. This is primarily because football is so dangerous that former players don’t throw on helmets and play on the weekends as adults. Since adults better understand the risks, they require being paid to play tackle football through salaries or scholarships, and many, like Chris Borland, Andrew Luck, and Rob Gronkowski, retire young because they don’t believe the risks are worth millions of dollars.

For the 94% who only play in high school, the absolute risk of CTE would be low, and for the remaining 6%, if they choose to continue playing and accumulate increased odds of developing CTE, they would be making that choice as an adult over the age of 18, the culturally recognized age of consent.

As we try to estimate absolute risk of developing CTE from high school football, we have one study that helps guide us. A team led by Dr. Kevin Bieniek examined the brains of 300 former athletes and 450 non-athletes for CTE. They found that among 15 football players who played beyond high school, 46.7% had CTE, and had a significantly higher risk than non-athletes. Among 124 football players who never played beyond high school, 12% had CTE pathology, twice the rate of non-contact sport athletes, but it did not reach statistical significance.

When this finding is combined with the BU study, the state of the science today is that each year of playing tackle football increases your relative odds of developing CTE. It is not yet clear that a high school-only football career would significantly increase your absolute risk of developing CTE pathology. NFHS referenced a JAMA study of 4,000 men who graduated from Wisconsin schools in 1957 and found no difference in cognitive function or decline between those who played football and those who did not as they reached age 65. The men played in an era where youth tackle football was not nationally promoted and not widely played – in our opinion, they represent what we hope would be the outcome from a high school-only football career.

But, to be clear, if a child starts tackle football at age 5 and plays 13 seasons through high school, we are confident all future studies will prove he will have an elevated absolute risk of CTE, and that’s why we discourage youth tackle football.

While we may not agree with every statement in its column, NFHS has a track record of helping change the culture of concussions and stewarding changes to sports to reduce the long-term neurological risk. NFHS has been a terrific partner to the Concussion Legacy Foundation’s Team Up Speak Up concussion education program, which activates coaches to have a conversation with their team about speaking up when they suspect a teammate has a concussion. NFHS has also been a driving force behind contact practice restrictions that we believe should reduce future CTE risk by reducing subconcussive head impacts.

However, we must address one message from the NFHS column that invites further elucidation. Studies of concussions and references to better concussion management are made in the column. All CTE studies from Boston University have found no correlation between diagnosed concussions and elevated CTE risk; it appears that all head impacts, both concussive and subconcussive, contribute to CTE risk. We also have no evidence-based reason to believe better concussion management will reduce CTE risk, although better concussion management will reduce risk of long-term concussion symptoms and is encouraged.

While CLF and NFHS may not agree on every nuance of the science and how it is communicated to parents so they can make the most informed choices for their children, we are all committed to promoting safer sports. CLF proudly stands firm with the message that Tackle Can Wait until high school.

Provocative new PSA “Tackle Can Wait” urges parents to wait to enroll their children in tackle football until age 14

PSA and corresponding marketing campaign suggest we should view youth tackle football as we do youth smoking

(BOSTON) – The Concussion Legacy Foundation (CLF) and health and wellness marketing agency Fingerpaint unveiled a new PSA today aimed at convincing parents to wait to allow their children to play tackle football until age 14. The “Tackle Can Wait” PSA drives home the message that youth tackle football is unacceptably dangerous for children.

The Tackle Can Wait campaign is inspired by a study published in the Annals of Neurology medical journal on Monday, which was led by Boston University researchers and concluded that the risk and severity of developing chronic traumatic encephalopathy (CTE) is not correlated to number of concussions, but is instead correlated with the number of years playing tackle football. The link is so profound that a high school football player who starts tackle football at age 5, instead of age 14, has an incredible 10 times the risk of developing the brain disease CTE.

The provocative PSA, which shows youth tackle football players smoking cigarettes while playing the game, is partly inspired by data in the study that shows the link between tackle football and CTE may be stronger than the link between smoking and lung cancer.

“We’ve prevented millions of cases of smoking-related lung cancer by raising the age at which an individual can smoke, and this is our blueprint for Tackle Can Wait,” said Chris Nowinski, Ph.D., Concussion Legacy Foundation CEO and study co-author. “Our best opportunity to prevent future CTE cases is to delay the age at which a child begins playing tackle football. If we are successful in convincing parents to wait until 14, we expect to prevent more than 50 percent of future CTE cases.”

The campaign was led by two daughters who both lost their fathers to CTE, Rebecca Carpenter and Fingerpaint employee Angela Harrison, and former NFL player Chris Borland.

“It’s hard to put into words the experience of being the daughter of a former football player with CTE,” said Harrison. “Rebecca Carpenter and I are passionately committed to saving other families from the horrors of this disease.”

Harrison, who led the creative on the campaign, is the daughter of Joe Campigotto, a star college football player who died with late-stage CTE in 2016 at age 65. She is also the mother of two young boys.

Carpenter, who directed the award-winning film Requiem for a Running Back, directed the PSA. She is the daughter of former NFL running back Lew Carpenter, who died with late-stage CTE in 2010.

“I think it’s wise for kids to wait until high school to play tackle football,” said Borland, a former NFL linebacker who is featured in the PSA as a referee. “Playing youth tackle football doesn’t increase the odds that you’ll get a scholarship, or that you’ll play professionally. It does, however, increase the odds that you’ll contract CTE.”

You can view the full spot, watch behind the scenes footage of the campaign and learn more about the study using the links below:

Tackle Can Wait Website
Tackle Can Wait PSA
Hear from the Creators: Behind the Scenes video of Tackle Can Wait
Former NFL player Chris Borland on Tackle Can Wait

*Embed links for each video are available upon request.

About Chronic Traumatic Encephalopathy (CTE):

CTE is a neurodegenerative disease associated with deficits in cognition, behavior, and mood. According to the U.S. Centers for Disease Control and Prevention, it is believed to be caused by repetitive head impacts, including concussions as well as sub-concussive trauma.

Hockey Hall of Famer Stan Mikita diagnosed with stage III CTE by VA-BU-CLF Brain Bank researchers

(CHICAGO) – Hockey Hall of Famer and Chicago Blackhawks legend Stan Mikita has been diagnosed with Stage III (of IV) Chronic Traumatic Encephalopathy (CTE). Researchers at the VA-BU-CLF Brain Bank, a collaboration between the VA Boston Healthcare System, Boston University CTE Center and the Concussion Legacy Foundation, made the postmortem diagnosis.

Dr. Ann McKee, chief of neuropathology for the VA Boston Healthcare System and director of the BU CTE Center and VA-BU-CLF Brain Bank, discussed the findings for the first time Friday evening at the request of the Mikita family during the Concussion Legacy Foundation’s Chicago Honors dinner.

“Stan Mikita was diagnosed with two neurodegenerative diseases that our research has shown are associated with a long career in contact sports such as ice hockey: CTE and Lewy Body Disease,” said Dr. McKee.

Prior to his death in 2018, Mikita visited the research team in Boston and made the decision to pledge his brain to give back to his fellow players, the game of hockey and support research. At the end of his life, he developed dementia, visual hallucinations and trouble walking.

Mikita is the eighth former NHL player diagnosed with CTE at the VA-BU-CLF Brain Bank, along with Derek Boogaard, Bob Probert, Reggie Fleming, Rick Martin, Larry Zeidel, Todd Ewen and Jeff Parker. VA and BU researchers also have diagnosed CTE in four former amateur hockey players, none of whom reached the NHL.

While CTE has been diagnosed in hundreds of former football players, scientists have struggled to acquire the brains of hockey players. Now that CTE has been diagnosed in one of the greatest NHL players in history, scientists and advocates hope this will spark more interest in research in hockey.

“We hope Stan Mikita’s pledge and CTE diagnosis will inspire greater participation in research from the hockey community,” said Chris Nowinski, Ph.D., co-founder and CEO of the Concussion Legacy Foundation, who helped facilitate Mikita’s brain pledge. “Without greater participation from the hockey community, we have little hope for treating or preventing CTE within our lifetime.”

CTE is a neurodegenerative disease associated with deficits in cognition, behavior, and mood. According to the U.S. Centers for Disease Control and Prevention, it is believed to be caused by repetitive head impacts, including concussions as well as subconcussive trauma.

The Concussion Legacy Foundation posthumously honored Mikita and his family with the 2019 Courage Award Friday at its Chicago Honors dinner for their selfless contributions to CTE research and endless commitment to serving the community.

Current and former hockey players have pledged their brains to the Concussion Legacy Foundation to support CTE research. The list of pledges includes former NHL players Keith Primeau, Shawn McEachern, Eric Daze, Craig Adams, Ben Lovejoy, Bob Sweeney and Ted Drury, and Olympic gold medalists AJ Griswold, Angela Ruggiero and Hayley Wickenheiser. More than 5,000 former athletes and military veterans have pledged to donate their brains to the Concussion Legacy Foundation. Those who are interested can make the #MyLegacyPledge at ConcussionFoundation.org/pledge.

About Stan Mikita:

Mikita was a steadfast leader in the Chicago community who was passionate about helping others. He was instrumental in bringing the Special Olympics to Chicago, and co-founded the American Hearing Impaired Hockey Association. On the ice, he’s one of the greatest to ever wear a Blackhawks jersey. The franchise’s all-time leading scorer spent his entire 21 season NHL career in the Windy City, leading the team to win the 1961 Stanley Cup Championship and earning the Hart Trophy as the NHL’s Most Valuable Player in 1967 and ’68. He was inducted into the Hockey Hall of Fame in 1983.

Concussion Legacy Foundation to honour Chicago Blackhawks legend Stan Mikita and family at 2019 Chicago Honors, co-hosted by former Chicago Bear Mike Adamle and Chicago newscaster Rob Johnson

Date: Friday, September 13, 2019
Location: The Palmer House, Grand Ballroom, 17 East Monroe Street
Time: 6:00 pm Cocktail Reception, 7:30 pm Dinner & Program
Contact: Julia Manning | (515) 201-7199 | [email protected]

(BOSTON) – The Concussion Legacy Foundation (CLF) will honor Chicago Blackhawks legend and Hockey Hall of Famer Stan Mikita and his family with the Courage Award at its Chicago Honors event on Friday, September 13 at The Palmer House.

Before his death last year at the age of 78, Mikita traveled to Boston University to participate in research on the long-term effects of concussions and repeated head impacts and pledged to donate his brain to the VA-BU-CLF Brain Bank. He made those decisions before being diagnosed with Lewy Body dementia, driven by a desire to give back to his fellow players, the game of hockey and support research. As one of the greatest NHL players in history, Mikita’s eventual brain donation helped raise the profile of brain donation and change the concussion and CTE conversation in hockey.

“Chicago was blessed to have Stan Mikita not only lead the Blackhawks for 21 seasons, but also reside here with his family and continue to support the community,” said Gary Fencik, former Chicago Bears safety and CLF Chicago Advisory Board member, who will be in attendance. “We look forward to showing his family how much we appreciated his final gesture to donate his brain to support research on the effects of brain trauma in sports and the military.”

In just over a decade, the Concussion Legacy Foundation has changed how concussions are managed in sports and has been the driving force behind our new understanding of CTE. Founded by former Harvard football player and WWE wrestler Chris Nowinski, PhD, an Arlington Heights native and John Hersey High School graduate, CLF has made an immense impact in Chicago. CLF has provided the first comprehensive concussion training for coaches in Chicago Public Schools, partnered with the IHSA to distribute its Team Up Speak Up concussion education program, and coordinated the posthumous brain donations of Chicago athletes including Dave Duerson, Bob Probert, Reggie Fleming, Chris Gedney and Mike Pyle.

Mikita is the Blackhawks’ all-time leading scorer. The Chicago sports icon spent his entire 21 season NHL career in the Windy City, leading the team to win the 1961 Stanley Cup Championship and earning the Hart Trophy as NHL’s Most Valuable Player in 1967 and ’68. He was inducted into the Hockey Hall of Fame in 1983.

Last year, more than 350 supporters and distinguished guests, including former Chicago Bears Gary Fencik, Mike Adamle and Doug Plank, attended the Chicago Honors and raised a record $215,000 to support the Concussion Legacy Foundation’s education, research and patient support programs. Previous Courage Award recipients include Jim McMahon and Mike Adamle.

Tickets are on sale now for the 2019 Chicago Honors, co-hosted by former Chicago Bears Mike Adamle and Chicago newscaster Rob Johnson.

About the Concussion Legacy Foundation:
The Concussion Legacy Foundation is a 501(c)(3) nonprofit organization. It was founded by Robert Cantu, MD, and Chris Nowinski, PhD to solve the concussion crisis by advancing the study, treatment and prevention of the effects of brain trauma in athletes and other at-risk groups. For more information, please visit ConcussionFoundation.org.

Statement from the Concussion Legacy Foundation on the passing of Nick Buoniconti

The Concussion Legacy Foundation is deeply saddened to hear of the death of Nick Buoniconti. Our thoughts are with Nick’s wife Lynn and the entire Buoniconti family.

Nick was one of the greatest football players of all time. In the final years of his life, since he was diagnosed with probable Chronic Traumatic Encephalopathy (CTE) in 2017, he also became a powerful force in the mission to understand and eventually cure CTE. Nick began his professional football career with the Boston Patriots in 1962, and we were honored that his last trip to Boston was to attend the Concussion Legacy Foundation’s 2018 Impact Awards, where we honored Nick and Lynn with the Impact Award. We thank Nick and Lynn for bravely sharing their story with the world in order to help others. Nick’s brain has been donated to the VA-BU-CLF Brain Bank for research on CTE.

While Nick was alive, he and Lynn started the Nick and Lynn Buoniconti / Dr. Ann McKee CTE Research Fund at Boston Medical Center. Donations to this fund are welcomed at this time. The BMC team was incredibly supportive of Nick as he fought the symptoms of CTE. Through the fund, Nick will continue to support research to help other families, even after his death. Donations can be sent to the address below or made at this link.

Attn: The Nick & Lynn Buoniconti / Dr. Ann McKee CTE Research Fund
Boston University School of Medicine
Development Office, L219
72 E. Concord St.
Boston, MA 02118

BU’s Tax ID is 04-210-3547